tag:blogger.com,1999:blog-53663915068302415922024-03-14T02:05:06.615-07:00Go Team Yardley!Meet the Yardley Family. Together they have braved and will soon be able to say conquered THREE bouts with cancer. Please read their story and help them out.Luke and Mariahhttp://www.blogger.com/profile/00259883309206980805noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-5366391506830241592.post-61119655901755391232013-04-15T00:09:00.001-07:002013-04-16T01:21:44.457-07:00 A Turn for the Worse!!! Events from April 10th-April 14th <br />
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Don't let that title scare you, but it definitly has been a rough couple of days. When I concluded my last blog, I was saying how Jason had begun to throw up. It was getting worse. On the take home directions that we are given when we leave Chemo, it says to call the Dr if you have thrown up three or more times in the last 24 hours without the relief of medicine. By 10 pm Wednesday night, Jason had thrown up 6 times with only cutting back to 5 zofran a day rather than the 6 that was keeping it under control. Of course this is what I had blamed it on. It felt good to take my anger out on the insurance again. We called the Dr and he didn't think we needed to go to the emergency room that night, but he would call in a perscription for Ativan and said to start taking the Zofran every 4 hours again. He also said we should go to the clinic first thing in the morning. We went and picked up the prescription, and luckily, Jason was able to rest well enough that night. Although when he woke up that morning and violently threw up the pills I had just given him, I knew this was going to be worse than I thought. Jason got his labs done. I believe mainly to check if he was bad enough to be admitted. We didn't have to wait long to get into a room. When the Dr had came in, like on cue, Jason threw up viloently again. I saw the look on the Oncolgists face, someone who sees this all the time, and left the room. I was scared. I didnt know what to do. Since I couldn't call my mom to comfort me, I called the next best thing, my Mother-in-Law. I told her how bad Jason was and that there was no way he was going to be able to go home that weekend, and I wouldnt leave him at the hotel alone. She told me she would go home to Mel and they would figure out what to do. I was so relieved. When I told Jason that his parents would help us, he smiled for the first time in a long time.<br />
The night before I had also called our amazing flight doc Capt. Dewilde, she told me she would get Jason what he needed. I told her that I would buy enough Zofran till we could get them from the pharmacy on base. After Debra had called me and told me she would fly into Abilene to take care of the boys so I could stay with Jason, I realized that we now wouldn't be able to get the Zofran pills from the base pharmacy. As Jason was resting with his IV fluid in him, I began calling a few people that could help me find someone who was coming up to Dallas in the next day that could bring the pills to us. I also knew that I needed to find someone to babysit the babies because I didn't want Debra wearing herself out tackling the babies while trying to watch Dylan and Jackson's games. It was good to be able to focus on something other than how horrible Jason was feeling. My life saver Sara said she would help me find some people to watch the babies. I felt bad having to tell her that she was mistaken and we still had another week to go. Luckily I got ahold of some people quickly. Our sweet neighbor Ana Ogdee would be there while they took there noon nap and a lovely girl from our ward Mariah Mayo. We had never used her before, but I had faith she would be great. It was a bonus when her mom told me she could drive. It just so happened that I knew for sure that someone was coming up to Dallas, because we talked about having her son stay at my house while she took her older daughter to a tournament up here. Jason was done with his IV fluids and we went straight over to Radiation. It didnt take long for him to throw up again, but I felt better knowing that he would have IV fluids again the next morning. While Jason was getting his radiation I was able to call my friend Lisa who was coming up. She said that they were not planning on coming up till Saturday morning. I told her that was fine and that I could just buy enough until I could get them from her. She said that she wasn't busy that night and that she could drive them up to me. I tried to refuse, but ultimately wore her down to meeting me in Weatherford so she wouldn't have to come through this dreadful traffic. She agreed to that. Jason and I finally got out of the Radiation clinic around 4 o'clock. I hated leaving him, but I knew that he was exhausted, and having peace and quiet for awhile would do him good. I got him his pills and tucked him into bed. Since it was 4:30, I figured I would head out and hopefully get farther then Weatherford so Lisa wouldn't have to drive so far. I got out of Ft. Worth without hitting too much traffic. Lisa and I kept texting each other to see where we would meet. We finally figured that Ranger was going to be a good spot. I pulled up to her car knocked on her window we both looked both ways while she quickly slipped me a brown paper bag. Considering how many pills there were and how much they were worth, discretion was due :) Nah just kidding, we joked about it! I kept telling her how terribly grateful I was to her for doing that for us, and the only reason I did it is so she would still let her son stay at our house that weekend. Dylan and him were DYNAMITE together!!!<br />
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Even though I had to drive in the dark the trip back went pretty quickly since I kept calling my friends to keep me awake. I got back to Jason just in time to give him his pills again.<br />
The next morning was a replay of the day before. Although this time the nurse was able to get Jason's Oncologist to come in and see him. He said that he wasn't too surprised that he was feeling like he was, he was actually amazed that he hadn't felt like this before. He said that he had another young man that was actually also in the military, and he was getting half the dose that Jason was getting and he had to be admitted to the hospital. He did say though, that if Jason didn't get better by Tuesday that he probably wasn't going to let him have his Chemo. I knew I had to do everything this weekend to make sure that didn't happen. I had told my sister earlier that we were having to stay the weekend. She was nice enough to invite me to dinner with her and my brother in law. We had a great time. I had to take a picture of Ty with his lobster.<br />
We started out ok. I babied Jason all day making sure he didn't move around too much especially after I had gotten him something to eat and given him a calorie-rich shake through his tube. We did pretty good and got a little too cocky around three o'clock Saturday. I needed to go to the pharmacy to pick up some meds for Jason. He wanted to go. This is where we learned our lesson. Don't go before you need your pills, don't go right after you eat something, and don't go on the HORRIBLE roads that are between here and the pharmacy. As I was coming back from the store I saw the sad look on Jason's face and emisis bag full in his hand. I felt defeated. I immediately knew that I probably shouldn't have let him come with me.<br />
We had been waiting to hear from Jason's good friend Mike Heddinger. He had sent Jason a text asking him if he could pay us a visit. Unfortunaetly his timing wasn't the best, but we were not going to show it. We had just came back when the phone rang announcing Mike's arrival. What Jason should have done was lay back in his bed and settled down and then I should have given him his pills. He was too good of a host even in his poorest hour. We all sat down together and Jason tried to act like he was fine. Everytime Mike said he should go Jason told him that he was fine and refused to make something out of nothing. I was surprised when Jason let me give him his pills right in front of Mike, but obviously he felt comfortable enough around him. The nausea monster hadn't let us go yet and a few minutes after I gave Jason his pills, he threw them up! He tried to play it cool, but he couldn't hold back any longer and excused himself to rest a minute. If it had been anyone other than Mike it might have been uncomfortable, but Mike is one-of-a-kind. We were able to talk for an hour and a half about everything. Jason finally came back out looking more like himself. He kept saying how wonderful it was to see Mike again. I will never forget what he did for Jason and how much that meant to him! Thanks again Mike!<br />
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I went to bed that night planning out exactly how I was going to take care of Jason the next day. So far it has worked Jason hasn't thrown up and hasn't complained about being in too much pain. I have just tried to cope with feeling terribly sad all weekend because I miss my boys so much. Debra was really good to send us pictures of them and tell us how well they did at their games.<br />
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I am so grateful that she was able to step in and never missed a beat with the boys and their crazy weekend schedule. My boys are so unbelivably special to be able to be taken care of so many different wonderful hands and always be the sweet loving angels that they ARE...YES I AM CRYING NOW. Probably a good time to end. I will continue to do my best to take care of Jason. Hopefully I will be able to report that Jason is able to get his Chemo and that we didn't have the problems that we anticipated. Thank you for all of your support and love. I couldn't do without all of you.<br />
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Love, Heather <br />
<br />Anonymoushttp://www.blogger.com/profile/07949306469189563793noreply@blogger.com1tag:blogger.com,1999:blog-5366391506830241592.post-6897723844016309682013-04-10T19:07:00.001-07:002013-04-10T19:13:07.308-07:00Exactly ....what do I name this carzy week!Events from April 1-10th<br />
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<br />
<div class="MsoNormal">
Really, I don’t try to seek out drama. I know I have a “history”
of “histrionics” as Jason so eloquently puts it, but I can make this stuff up.
We did instigate it a little, but we were just standing up for ourselves.
Jason always tells me that I should write a book about my life. Maybe someday I
will, but I need to make sure it has a happy ending first. </div>
<div class="MsoNormal">
Let me begin with the morning after we finished our last
post. I can’t remember how much I talked about this earlier. I still feel a
little guilty about what we did, but maybe if I can convince you I can convince
myself!! We were told the previous Thursday we would be able to get back to our
room on Monday evening after they had finished “treating” the room. We knew
that they were ‘treating” the room by bringing in heaters and raising the temperature
up to 120 degrees for 4 hours. Please keep in mind that they were just doing
this as a precaution. They didn’t find an “infestation” in our room per say,
but “possible evidence of an infestation”. The DO told me that they could lay
eggs and that in could become “infested” again if they didn’t do this to kill
the “possible” eggs. When we got to the hotel I went down to talk to the DO. He
wasn’t there so I was led to the GM. He briefly explained that they weren’t
able to get the room up to 120 so that the pest control company was going to
bring more heaters tomorrow. I was annoyed and knew Jason would be livid. I joked
with him that well we were going to go to a movie; I always like an excuse to
have to go shopping. He said bring us the receipts we will do whatever we can
for you.</div>
<div class="MsoNormal">
Jason had taken the news better than I thought. I think he
was just excited that I agreed to go to the GI Joe movie with him. We arrived
at the mall and I saw a store that interested me right across from the movie
theater. Jason saw some comfy chairs, so I knew I would have all the time I
wanted. I found something I liked. It was time for the movie, and thought that
maybe Jason would be able to shop a little if he rested long enough at the movie.
I was wrong. He knew that we needed to buy something for him to wear, so he
said he would just wait for me in the truck. Dallas is really funny, you can be
in a nice neighborhood and go a block and be in the ghetto. This mall was a
great example of that. I stuck out like a sore thumb!! I FINALLY found Jason a
shirt that I thought he would like and walked back through the mall very
quickly!!!</div>
<div class="MsoNormal">
I love the mornings before Jason begins another round of
Chemo. He is feeling the best he will feel for the week, and he is looking
forward to relaxing all day in a comfy chair. I know I will be literally
sitting at his feet waiting on him. Nothing makes me happier!! The day went very
smoothly we were able to get back to the hotel at a reasonable hour. Now that
Jason was on the right “cocktail” of medicine he was doing better. We knew we
would have to let the room cool down so we planned on just moving all of our
stuff over on Wednesday morning. I called before we head over to make sure the
roomed had been cleaned. They transferred me over to the DO who was now back to
work. I asked him if we were all set to move into our room. He said coyly, didn’t
they tell you, I said yes the GM your BOSS said that they were coming back
yesterday. He was silent for a second; probably trying to decide how he was
going to break this to me. He said well I believe he was mistaken because they
are not able to come back until Thursday. I tried to remain calm. <span style="mso-spacerun: yes;"> </span>I said well we didn’t bring enough clothes to
stay out of our room until Thursday! He said well can you go over to your room
and get what you need and they would send it out to be dry cleaned and it would
be returned to us at 4pm. Jason didn’t take it as well this time. He told me to
go get EVERY PIECE OF CLOTHING WE HAD OVER THERE. I tried to calm him down and
play down the situation. He was starting to argue with me and I knew he wasn’t
going to let it go. Right then I decided to do what Jason said. He was hurting every
time he talked and getting upset was just going to make that worse. I didn’t
deserve to take the punishment because they have such poor communication at
their hotel. So I did it. I went down to the front desk to get some big garbage
bags, also hoping to run into the DO and warn him about what was going to
happen. <span style="mso-spacerun: yes;"> </span>I didn’t see him and continued
on. I got everything out loaded it on my back. I took this picture knowing that
I would have to have proof of what I really did. </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNdXUIh3pzhMZ67ZTH6iGTrjga2VozcNRj-XZReTIz7ySXIO9xQZ5mYWQ3ZTaqPiPucr_eNDqvvNtyF4O6DUuOqMGJwPBHnU4Oz0Mv_RYZRwVgQOIdnd5bhMMp__1Cw1zNVDfUMuCe1TE/s1600/Laundry.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNdXUIh3pzhMZ67ZTH6iGTrjga2VozcNRj-XZReTIz7ySXIO9xQZ5mYWQ3ZTaqPiPucr_eNDqvvNtyF4O6DUuOqMGJwPBHnU4Oz0Mv_RYZRwVgQOIdnd5bhMMp__1Cw1zNVDfUMuCe1TE/s400/Laundry.jpg" width="226" /></a></div>
<div class="MsoNormal">
I tried to not think about how much the bill was going to
be, but had no idea it could be what it was. We called the front desk at 5 and
they said that they had just received our clothes and the bell boy would bring
them up. Another hour later, we still had no clothes. Also we had noticed that the
microwave in this room was acting like our old one. Jason said he would go down
with me to see where our clothes were and to tell them about our microwave. I
walked back with the bell boy to get our clothes while Jason stayed to talk to
the attendant. I walked back to the desk just as I had saw the attendant say
yes I hear you and shooed Jason away with his hand! Even though Jason was
slightly stoned that guy had no right to do that to him. The bell boy helped
wheel the cart up and we started transferring the clothes to our closet. I was
looking at some of the receipts but didn’t notice the total. Jason said HOLY
COW the total is $665. I was shocked and felt sick to my stomach. I knew that
they wouldn’t say anything to us about it. The DO said from the very beginning that
he was scared this was going to be leaked out to the news. I tried to justify
it by telling Jason that well if the GM hadn’t just tried to get rid of me and
found out the real story. I would have said ok well we will by some new clothes
and you can pay for the bill.<span style="mso-spacerun: yes;"> </span>I can tell
you it would have been a LOT less than $665.</div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="separator" style="clear: both; text-align: center;">
</div>
<div class="MsoNormal">
The rest of the week went better. Nothing was bothering me
except some problems I was having about care and rides for Dylan. We were
relishing in the fact that Jason was able to eat a little and was gaining some
weight back. Even though our room was ready by Thursday night, I told them that
we would give them a chance to clean it up well and we wouldn’t move in until
we came back on Monday. Friday morning Jason was getting a liter of fluids to
give him a little boost for the weekend. The ride home was a little hairy with
Jason feeling nausea, but we made it home safely. When Jackson showed me a
birthday invitation for that night I was worried that it would have been too
little of notice. The invitation had a number on it and I left a message saying
that I had just found about the party and that my son wanted to go, and to please
let me know if it was too late. It worked out perfectly because Dylan had a baseball
game at 6 and the party was at 7:30. Jason first said he could watch the babies
while I took the older boys to the game. Then Jason came to me an hour before
we were to go and asked if I could take Harrison to the game. When we were set
to leave and I saw that Jason was asleep. I loaded all of the boys and headed
out. Dylan did AWESOME! I was so happy that they were finally able to be proud
of how they were playing. The kids did well; I was able to keep them contained
for most of the game. </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMWYjlsVNtOq6g7sOmHjq8qKQHO66qkW3h9TO-Cz0ah9UnlDkT_LTdX5lWyQWbFkv06t45SdE6Qp9MNHdsoi7waRw9zaurZDpD0GT3CEUrsaJ7DvYk9v_4-K8oLjnCxaupBvzIM92G2yM/s1600/Dylan+Hitting.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="212" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhMWYjlsVNtOq6g7sOmHjq8qKQHO66qkW3h9TO-Cz0ah9UnlDkT_LTdX5lWyQWbFkv06t45SdE6Qp9MNHdsoi7waRw9zaurZDpD0GT3CEUrsaJ7DvYk9v_4-K8oLjnCxaupBvzIM92G2yM/s320/Dylan+Hitting.jpg" width="320" /></a></div>
The game was lasting a little longer then I thought it
would, and I wanted to leave to get Jackson to his birthday party on time. I
thought they were going to just finish out the rest of that inning. Dylan had
asked if they win the game if he could spend the night at his friend Seth’s
house. How could I say no to that. I had already arranged for Seth’s mom Lisa
to give Dylan a ride home since I was going to be taking Jackson to his party.
As I was exiting the parking lot I got a text from Lisa. She said Dylan just
hit a HOME RUN!!! Seriously I got Jackson to his party and I knew the Mom from
helping with the Christmas party for Jax school. I was asking her if she could
text me when they were done and I could come pick him up, she had said that
they had played really well at the zoo that day and asked if he could spend the
night. I felt a little bad about being apart from him when we hadn’t seen him
all week, but knew we would be with each other ALL day tomorrow! I got clothes
for Dylan to change into went home and washed his outfit for the morning. I
knew Saturday was going to be a big day, but stayed up to watch all of the Glee
episodes I had recorded! I had to take advantage of Dylan and Jackson not being
there to see it!<br />
<div class="MsoNormal">
This is how Saturday went… Kellen got me up at 6:30 (after
going to bed at 2). Made the babies breakfast got them dressed. 8:45- Jackson
was dropped off got him dressed everyone loaded up. 9:15- dropped Jackson off
for pictures and asked another players mom to watch out for him. Went to where
Dylan was spending the night and dropped of his uniform. It was colder than I
thought so I went back home for warmer clothes for us to wear. 10:00-Watched
Jackson’s game with Kellen and Harrison. It was nice to have help from a player’s
little sister to entertain the babies. Jackson got on base every time and
played catcher too. He did a good job, as long as the ball came right to him. Luckily
I had cash on me, because of course I had trashed the email that had the sno
cone schedule and it was my turn! </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWwnCeJzJ2wHVf-AZYs0P3xI88GsEAMMBltUNSdAbH4lZl0p2P4s4pQC0KzsEdzu2Jl_jYYuJsDkwf4hme7rWIXGse_GTeurOOzNWytm3g79qieeXjK_0HWI8TJpDJ9S8QciH9hLvY8qo/s1600/Jax+Catcher.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="180" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWwnCeJzJ2wHVf-AZYs0P3xI88GsEAMMBltUNSdAbH4lZl0p2P4s4pQC0KzsEdzu2Jl_jYYuJsDkwf4hme7rWIXGse_GTeurOOzNWytm3g79qieeXjK_0HWI8TJpDJ9S8QciH9hLvY8qo/s320/Jax+Catcher.jpg" width="320" /></a></div>
<div class="MsoNormal">
11am -We went home to get the babies down for a nap and have
Jackson change into his soccer uniform. Jason was awake on the couch but I knew
the babies wouldn’t be any trouble for him since they would be sleeping. After
changing my clothes again because it was now warm we headed back to the
baseball field. 12pm-Dylan did great at his baseball game. He wasn’t able to
get another home run, but got a triple a couple of times. Luckily I still had
cash because it was also my turn to pay for Dylan’s sno cones. 2pm- We were
able to be on time for Jackson’s soccer game. Dylan got a ride home and was
able to spend some quality time alone with his dad. Jackson did really well at
his soccer game. He is totally different boy than the one who just played in
the dirt and ran a step behind everyone else last year. 3pm- headed home babies
were up changed their diapers got them something to eat. Loaded everyone up
headed to the store to get a present for a birthday party that Dylan was going
to at 4pm. Dropped him off and arranged for another mother to drive him home. 4:30pm-
Finally sat down, but it was on the trampoline with my babies. It was
wonderful!</div>
<div class="MsoNormal">
Sunday was just what it needed to be calm and peaceful, well
as much as it can be with 4 boys in a little house. I should have known it was
what I needed to recuperate and prepare myself for what was to come this week.
We had watched the morning session of conference. What I could hear of it was
very touching and inspiring.<span style="mso-spacerun: yes;"> </span>We are so
blessed that the kids do so well with staying with people. I don’t what I would
do if my child cried and screamed every time we left them. I used to joke that they
didn’t mind leaving me because I wasn’t any fun. That is obviously not true.
All of my boys have a cozy blanket of security. They know they are loved
unconditionally and will never be in any harm or danger. I thought that I could
only feel “Mama Bear” protecting her cubs, with my boys, but it showed up this
week when I was fighting for Jason.</div>
<div class="MsoNormal">
We said good bye to Dylan and Jackson when they left for the
bus that morning. Jason slept in while I got the babies ready… almost in time
for my two great friends Jodi and Crystal to take over. While Jodi was there
she saw how Kellen was talking. She said he didn’t do that at all when he
stayed at her house last time. I initially felt sad when I heard that. I try
not to think about how my boys are doing for these reasons alone. I felt relieved
when he was leaving he vigorously waved bye to me from the car. I knew he would
be my Kells Bells now, himself!</div>
<div class="MsoNormal">
Jason took a nap on the way up to Dallas. We didn’t have to
wait long to get in. As we were leaving the parking lot of the radiation
clinic, Jason said that he had to get a refill for his Zofran. I panicked
because I knew that it wasn’t going to be that easy. I asked him how many he
had left and he said 2. Then I really panicked. I knew I had only 8 hours to
get what he needed. My fight or flight was put into motion. I called the pharmacy
and said that we needed a refill. They said that the insurance denied it, and
that our doctor needed to call the insurance to request the medicine. Luckily
Mary the secretary for Dr. Nedzi was very understanding with me and realizes
the panic and seriousness in my voice. See Jason makes fun of me for this. Comes
in handy in situations like this. I called the pharmacy back and they said that
the prescription was ready. I was surprised; they refilled the Zofran that
easy? No your Dr. called in Promethazine. I told him that medicine didn’t work
and we needed the Zofran. Jason was right in front of me when I was saying this
I told him to get Mary’s number for me. He must of misunderstood me because he
had called her. Of course she answered her phone right away, unlike most in the
medical world, so now I had Mary on one ear and the pharmacist on the other. It
actually worked in my favor because I was able to tell Mary word for word what
the pharmacist needed. I got off the phone with him first and she explained to
me that the doctor had a couple of patients to see first then he would call
them again. I knew there was nothing else I could do. I trusted that the doctor
was going to do what he needed to do to make the insurance see the error of
their ways. I had gotten dressed up that day because usually Jason feels best on
Mondays and we can go to a movie. Of course the chemo and radiation had finally
gotten the best of him and he was too tired. He then did something hardly ever
does, and told me to go get a pedicure. I didn’t waste a minute and headed out!
<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span></div>
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<br />
<div class="MsoNormal">
I was deep into my happy place we all know about when you
are getting a great massage when the doctor’s office called. I was surprised to
hear it was the doctor himself. Dr. Cannon was the new intern working with Dr.
Nedzi. What a way to begin! He said that he had haggled with the insurance
company and what we had to do was write file a prescription appeal. We had to
write a letter explaining why he needed this medicine and that UT southwestern
had permission to give it to him. What a pain!!! Remember caught me in my happy
place! No problem we would make it work! They agreed to give Jason enough for
three days. I was able to pick that up on the way home. I felt like I was
giving Jason a million dollars or gold coins when I put those pills in his
hand! I told Jason about the letter and since he had a nap he was pumped enough
to do it. It was late and Jason didn’t want to go down to the office in the
hotel to print it up, but he had done something to my phone so I would easily
be able to do it while he was in getting chemo. We didn’t even need to wait
that long, because after only being there for a few minutes I walked up to the
first person who had a printer and asked them who could help me. She told me
about calling the tech personal, but I knew it was going to need that. Jason
had showed me how to ask for available computers on my phone, but then I
realized that I could just email it to this girl and she could print it up. She
said that would be fine and gave me the paper. Jason signed it, and then she
even faxed it for us.</div>
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<span style="mso-spacerun: yes;"> </span>I was hoping to get
going on my letters, but I didn’t have the drive. I was just drained! I was
then surprised to receive a text message that my trusty clan in Abilene had
finally done the impossible! My good friend Kristy told me that they had secured
a venue for the Yardley Fun Run in Abilene! I was so relieved! I had invited
family that didn’t live in Texas and was going to be so disappointed if I told
them it wasn’t going to happen. I definitely needed to hear that great news! I
still didn’t get that wonderful drive I needed do get what I needed done, but I
was a lot happier! The nurse who was taking care of him at the chemo clinic was
great. She had talked about problems that she was having with her son, and it
really put ours into perspective. We got out of Chemo and headed straight over
to radiation. We didn’t realize that we had to have our appointment with the Dr
that we usually have on Thursdays. It actually worked in our favor because
after us complaining so much about the Zofran, we realized that he was going to
run out of his pain medicine too. I am so unbelievably appreciative of everyone
who is helping with this insurance issue. This sweet nurse has been helping us.
She had called the insurance and argued with them. I thought it was funny how
she was more fired up about it than I was. She again called me this morning and
told me how they were going to keep on them. </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG0lA7FRzVwWK52Zh6ZDbGJIWawbqk0QgdXQS8ol1xucNjba85U8ymMP3Okk9S_BNq9CaCT4tICQ2vOaWXdJBT7uV5s03C7tLRVivUhvBnsxZg29L10D5CPlP_3-_3nAppzby_YufdN24/s1600/Me+Fire.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="180" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG0lA7FRzVwWK52Zh6ZDbGJIWawbqk0QgdXQS8ol1xucNjba85U8ymMP3Okk9S_BNq9CaCT4tICQ2vOaWXdJBT7uV5s03C7tLRVivUhvBnsxZg29L10D5CPlP_3-_3nAppzby_YufdN24/s320/Me+Fire.jpg" width="320" /></a></div>
<div class="MsoNormal">
We had been been pretty worn out after all that, and it was
getting pretty late. I bought some more fast food on the way home. I think I
feel like if I can eat all this fattening food maybe Jason will inherit my
calories…hmm not so much! I thought the drama for the day was over, but when
Jason had been asleep for a little while and I had just barely gotten there,
our FIRE ALARM had suddenly gone off. I think I was still asleep and ran to the
bathroom and pulled my scentscy plug in out of the wall and it crashed into the
sink. Luckily it was just white wax. Jason started getting dressed so I quickly
followed. We got inline with everyone else heading down the stairs. I called my
MIL so she could experience this chaos with us. We got down stairs and the fire
truck was quickly in the parking lot. We waited awhile; I didn’t think there
was a fire, just one of the faulty blunders that this hotel was known for. We
got back into our room an hour later. It was another night of Jason getting up
every hour, but I was in a deep sleep when again the fire alarm went off at
7:30 in the morning. I was trying to talk Jason out of it, but we got dressed
and headed down stairs. There were less people then the night before, and when
we didn’t see any fire truck I walked over to the front window and saw the
clerk behind the counter. We walked in Jason actually asked her if we were ok
to go back in. She rolled her eyes and played it off; she said there is just a
kid who keeps pulling the fire alarm! Huh! Really blaming it on a kid! Where is
this kids parents and why aren’t they getting fined $10,000 for doing this! Oh
boy! So here we are! Well 8 hours later! It wasn’t a continuous 8 hours, but I
have had a lot to talk about. Sorry if I got a little worded, as Jason likes to
say. I don’t know how I am going to keep this up when I am back home. Hopefully
there is not much to say other them Jason is less nauseous, Jason is getting
more energy, Jason is in less pain, Jason is eating more, Jason can move his
tongue better, Jason can talk clearly, Jason had a clear MRI!!! Thank you again
for all of your prayers and support. If you are one of the doctors, nurses or secretaries
that have been helping us, please know you are the best! Thank you for doing
your job so well with so much care.</div>
<div class="MsoNormal">
P.S. if there is a P.S. in blogs! Just had a brilliant idea!
Called our trusty friend Kristin and she is going to help us with our Zofran
situation! You might get hit in the face if you complain about the pharmacy on
base! Jason has tried to cut down on the Zofran and has already thrown up two
times tonight. I will be fuming if we have to take him to the ER again!!!!</div>
<div class="MsoNormal">
<span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span><span style="mso-spacerun: yes;"> </span></div>
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Anonymoushttp://www.blogger.com/profile/07949306469189563793noreply@blogger.com0tag:blogger.com,1999:blog-5366391506830241592.post-68155595283564072752013-04-02T21:07:00.002-07:002013-04-02T21:07:25.008-07:00What an Easter Weekend!!<!--[if gte mso 9]><xml>
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Events from 28-31 March 2013</div>
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Hello Everyone! How was your weekend? Oh boy ours…..came in
busy, topped off scary, and ended relieving. I thought all the drama was behind
us with the infested room and my newly faded black pants, all thanks to
housekeeping. After Jason threw up on Thursday night, his stomach was a little
unsettled. Nothing sounded good to him, especially anything that would aid in
his weight maintenance. That continued Friday morning, he was able to eat some
Cream of Wheat for breakfast, but that was pretty much it for the day. He was
exhausted by the time we came home and spent most of the night in bed. That was
ok with me, because the babies stayed home with me while Grandma and Grandpa
took Dylan and Jackson to “Oz”. I was able to be introduced to a whole new side
of Harrison. He is the baby of the family, but wasn’t acting like it. He was
standing on our little rocking chair backwards and rocking it… hard watching me
watching him… smiling. I thought my goodness when did you become the little
rebel of the family! Then he recruited Kellen in on the action and they climbed
the chairs in the kitchen and proceeded to climb on top of the table, stand,
and laugh at me!!! Seriously this is my 16 month old dragging his 29 month old
brother to the dark side. Luckily I was able to distract them with lying on the
ground and letting them attack me. That always works. One thing nice about
being away from my boys all week, I appreciate playing with them so much more.</div>
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Jason didn’t get much better by Saturday morning, but he was
able to eat some more Cream of Wheat and pumped himself<span style="mso-spacerun: yes;"> </span>up enough to ride out with Dylan,
Jackson,<span style="mso-spacerun: yes;"> </span>and I at 9:30 for Jackson’s
10:00 game and Dylan’s 12:00 game. I personally thought he might last through
Jackson’s game, but he wouldn’t feel as bad missing Dylan’s because he had seen
him play before. I was about 1 mile away from home when Jason asked me for a
bag. He then threw up, pretty violently. The boys went quiet. I was worried
about Jason, but I was also worried about how the boys were going to take it.
They did pretty well with it. I just explained to them that daddy had poison in
him that was killing the cancer, but it made it sick sometimes. I wasn’t so
sure myself though. I didn’t know why Jason was throwing up when he wasn’t
complaining of being nauseous. 12 hours later I wished I had turned that car
around right then and forced Jason to stay in bed. We went on and pretended
everything was ok. Anyone could just look at Jason and see that he was not ok,
but no one says anything. Jackson did great at batting, but when he was told to
run to second he said “No, I need to conserve my energy.” <span style="mso-spacerun: yes;"> </span>It was hilarious. </div>
<div class="separator" style="clear: both; text-align: center;">
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<br />
<br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMDudXAPnk-zFXBivDoUaXCPVpOqJpCA5XlierD8UnLfduhtmL804J48x2KRQLMqPe_v3gzfFAd7A9Kv-jmvpJ1ozhk8nojknY8mf-p_YwIjfHVXtgAQfGTSrugdbouaDpjp7tjIVqK4o/s1600/2013-03-30_10-29-48_360.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiMDudXAPnk-zFXBivDoUaXCPVpOqJpCA5XlierD8UnLfduhtmL804J48x2KRQLMqPe_v3gzfFAd7A9Kv-jmvpJ1ozhk8nojknY8mf-p_YwIjfHVXtgAQfGTSrugdbouaDpjp7tjIVqK4o/s320/2013-03-30_10-29-48_360.jpg" width="180" /></a><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUNLf3OnS0rewcN-DoW9p9kjCkEExn0rtFM2IR74cXll_SxKf8LUKe3WMbzXDAMsgT7gvFNKKdMSEm7QgdSuRqjy6MKC51W6idZXCVJcbBWz9f9RtyyDsk0lR7mTS5meCCyfpWDDPNCjM/s1600/2013-03-30_11-08-42_732.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhUNLf3OnS0rewcN-DoW9p9kjCkEExn0rtFM2IR74cXll_SxKf8LUKe3WMbzXDAMsgT7gvFNKKdMSEm7QgdSuRqjy6MKC51W6idZXCVJcbBWz9f9RtyyDsk0lR7mTS5meCCyfpWDDPNCjM/s320/2013-03-30_11-08-42_732.jpg" width="180" /></a>I was hoping that Jason would nominate when I said “Someone
needs to stay home with the babies next game, any takers?” Obviously I wasn’t
talking to Grandma and Grandpa, but Jason said I want to watch Dylan. I knew
that Dylan’s game would be at least 90 minutes, so Jason wouldn’t get home
until after 1:30. I knew that he wouldn’t be able to eat anything that they had
there and wasn’t going to rip out his feeding tube and bolus feed a protein
shake in front of everyone. That was what I was thinking about, that he wasn’t
going to be getting any calories. Not that uh dud, along with not getting
anything for substance, he wasn’t getting any liquid either. He went from
drinking ½ gallon of milk a day 3 days ago, to not even be able to take a sip
of water without gagging. He came home at 1:40 and went straight into the
shower. I went in to see if he was ok. He said that his pee was brown, and he
had to start rehydrating himself ASAP. He was right thinking that gravity
feeding 2 oz of Vitamin Water and 1 oz of water every 15 minutes was a good way
to not upset his stomach, but still get what he needed. After 2 hours of doing
this, we relaxed a little and tried a lemon Gatorade. Nope didn’t work and he
threw it up. I called our good friend, who happens to be our flight doc,
Kirstin Dewilde.</div>
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It was Saturday afternoon and I hated to have to call her,
but I knew that she would help us out. I told her what was going on, and she
told us we probably should have gone to the ER when his pee was brown, but just
to keep doing and what we were doing, and go to the ER if he throws up again or
doesn’t pee by 10 pm. Well we didn’t have to wait that long because when I came
in from doing yard work with Grandpa and Grandma to wake up Jason for more
hydration at 7:45pm, he said that he had just thrown up again. I jumped in the
shower and we drove to the “other” hospital (see first story for our reasons why
we avoid the hospital that is only 2 miles from our house) We have heard a lot
of good things about Hendricks and most of our doctor friends worked there.
Unfortunately the friend who is an ER doctor wasn’t working, but I thought
about name dropping him to push the pill seekers to the side and get my husband
hooked up to some saline before he went into kidney failure. Obviously this is
what I was feeling, but Jason was telling me too chill out and that he would be
ok. When I realized I was bleeding on my arm because I was digging my nails
into them. </div>
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I “waited” patiently behind the other drug seeker (maybe
not, but no one there deserved treatment more than my husband… in my eyes) and
asked if they were going to be able to help us soon. I don’t know if it helped
or not, but he was called up next. After they saw him up close and heard that
he was a cancer patient they got him into a room pretty quickly. I felt a
little better, but I knew there were a lot of people there and it was going to
be awhile till Jason saw the Dr. A moment later a male nurse came in who was an
Abilene native. He was just what we (I) needed to put us (me) at ease. He said
that he needed to draw some blood for labs and it would take around 45 minutes
before they would get done. Then we would probably see the doc. I was about to
throw a fit when he said, “But I will start an IV soon so we can get you back
on track” Now I could finally chill, even more when he actually did it! Another
hour went by and still no Dr, but it was time for Jason to take his morphine
pill and since he was in too much pain to swallow his pain pill….yeah I know,
case in point, I needed to track down our nurse.</div>
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Found him pretty quickly, and since he couldn’t find a pill
crusher for Jason’s oxycodone and the ER doctor couldn’t prescribe the Morphine
granules that Jason could fit into his feeding tube. They gave him Dilaudid,
never heard of it, but they said it was Morphine’s “big brother” so we thought
we could give it a chance. It worked and another hour later the doctor finally
came in. He said that all the labs hadn’t come back yet, but what had come back
looked good. I said even the kidneys, well that was the one we were still
waiting on, of course. We told him what had happened and why we were there. We
told him that we didn’t understand why Jason was throwing up if he wasn’t feeling
nauseous. We also told him that since Jason was on a clinical trial, that he
had to call the on call doctor in Dallas. He told us that he would do that and
get back to us, but he would like to see Jason get another liter of fluid!!! It
was now 12:00, and we were pretty sure we would go home tonight, but had no
idea when. The doctor finally came in again and he told us that he had talked
to the on call doctor in Dallas, and they had a plan!! </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfIDLaf70Gzv6Pc6GyonauJO0PCZQQ6bOX1i7pkspLsCqpzKctKDwX0Ysd7M_kCcvSqpxKkf-1TwpxjV3J1mLy-_-jXW2AFYUlqgMNIEOxFj1VfQonyw9MN-TY0IPQGPn2noWsbS8ZX1o/s1600/2013-03-30_20-50-31_519.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfIDLaf70Gzv6Pc6GyonauJO0PCZQQ6bOX1i7pkspLsCqpzKctKDwX0Ysd7M_kCcvSqpxKkf-1TwpxjV3J1mLy-_-jXW2AFYUlqgMNIEOxFj1VfQonyw9MN-TY0IPQGPn2noWsbS8ZX1o/s320/2013-03-30_20-50-31_519.jpg" width="180" /></a>Jason was experiencing side effects of the chemo. He may
have not felt nauseous, but his body was reacting that way and he needed to get
Zofran on board and take 1 pill every 4 hours, and that he couldn’t take too
many. That was different than what we heard different from the Chemo Doctor
today. We just barely talked about it, and Jason will use 4 Zofran pills a day
and use the Phenegran at night. Anyway, back to the story.<span style="mso-spacerun: yes;"> </span>He explained how he should take his feedings
slower, and mentioned some other tricks. He believed that we would be ok once
the Zofran was on board. Since they couldn’t go by his test results because
chemo messes with them, they wouldn’t let us leave until Jason peed. He said
that why not add another bag and force it out of him!!! Halfway between the
third bag Jason finally did it. I have a picture of it but Jason won’t let me
post it. I will have to say that it was the color of rust. Yuck!! The doctor
and nurse came in and said oh yeah you were really dehydrated. When we got home
we pretty much got conformation of what the ER doctor said. </div>
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It had been 4 hours since the nurse added the Zofran to the
IV. Jason came home and immediately ran to the kitchen sink and threw up. We
got his pills crushed now including his Zofran and got him straight into bed.
It was a short night for me when Kellen came and woke me up at 6 am. I about
told him to go find Grandma and Grandpa, but of course they didn’t go to bed
until we got home and they had done so much for us I knew they needed their
sleep more than I did. Every ½ hour another Yardley boy crawled out of bed so
by 8 am I had 4 very excited boys that wanted to get to all the presents that
“Easter Bunny” AKA Grandma had brought them! I distracted them with pancakes
and kept everyone contained till 9 am. Jason had actually come out shortly
after Kellen woke me up and said go hide the eggs outside. Um yeah that wasn’t
going to happen. Luckily after the two oldest woke up I was able to saddle them
with Kellen and told them I had to go outside and see where the bunny had hid
the eggs so I could help them find them later. Yes that actually worked.</div>
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It was about 9:30 and I had asked Jason earlier if he wanted
me to wake him up when the boys went looking for eggs so I wanted to wait until
he was close to needing to take his pills. The boys loved all the presents that
the “Easter Bunny” AKA Grandma had brought them. Finding the eggs was exciting
for the older boys but the babies didn’t really know what was going on. After
awhile Kellen caught on, but by then Dylan and Jackson had decided to destroy
all the eggs by throwing them at the fence. I went in and got the plastic eggs
and hid a few! We were able to get the babies in a nap before church, but it
didn’t matter with Harrison because he still kept giving Grandma a hard time. I
was glad to have the help because the talks were so wonderful. I was sad that
this might be the last full sacrament I will be able to attend until Jason is
well enough to join us. We had to leave after Sacrament to take Grandma and
Grandpa to the airport. The boys weren’t too worried when they left because I
reassured them they would see their grandma and grandpa real soon! Not having
to focus on a big Easter meal kind of took the nostalgia away for me and Jason,
but we know that there will be plenty of more years to get back into
traditions!!! If you are still reading this, thank you for sticking with it. I
joked with Jason that I had to write a big long explanation why our kids were
in their diapers and pajamas for our Easter hunt picture. <span style="mso-spacerun: yes;"> </span>Feel free to leave a comment. It helps for me
to know how to lay down future posts.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmwxRk-Pou-bLz7Nfg30zkC3bt86h4VoXPfrnfp3cvzCj5Y5fLdwadnd1tiN0O8HAsdSqLFlTweBomRk2BGlFtUNbrE9vlpubOCjpPfZQtOhGCLJmv7b_0daTa0_TBmC__qeX4pI5FWyk/s1600/2013-04-02_07-34-07_254.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmwxRk-Pou-bLz7Nfg30zkC3bt86h4VoXPfrnfp3cvzCj5Y5fLdwadnd1tiN0O8HAsdSqLFlTweBomRk2BGlFtUNbrE9vlpubOCjpPfZQtOhGCLJmv7b_0daTa0_TBmC__qeX4pI5FWyk/s320/2013-04-02_07-34-07_254.jpg" width="240" /></a></div>
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Anonymoushttp://www.blogger.com/profile/07949306469189563793noreply@blogger.com2tag:blogger.com,1999:blog-5366391506830241592.post-34828890978790642852013-03-28T07:50:00.001-07:002013-04-03T17:35:21.567-07:00Really no REALLY!!!!!<span style="font-family: Verdana, sans-serif;"><span style="font-size: small;">25-28 March 2013 </span></span><br />
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<span style="font-family: Verdana, sans-serif;"><span style="font-size: small;"> Well it is me<span style="font-size: small;">,</span> <span style="font-size: small;">on the blog</span></span></span><span style="font-family: Georgia, "Times New Roman", serif;">, <span style="font-family: Verdana, sans-serif;">computer on my lap, ready to tell another fascinating story. Like I said earlier, Jason was having a hard time deciding what to do about his "cracked" muffler. We went to a four wheel drive shop where Jason was a kid in a candy store, unfortunately they didn't have what we needed. We then went halfway across the city to find an Academy Sports, and a Pep Boys. Seriously Dallas has everything, but it is <i>SPREAD OUT</i>. We came home defeated. BTW Academy Sports had nothing to do with our quest for a muffler! Since Jason hasn't had Chemo for a week and a couple of days to recover from radiation, Monday is his best day. But of course we took it too far and were exhausted by the time we got back Monday night. </span></span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-family: Verdana, sans-serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvj4Nu3pCO3EYWOAPjAJSSCNyWDO68iFAH6rux_QsAhqqaT-dTN4c2MVHL2j7XRRfs4h-XhnnlIV261NKvz_6WzaeWa659u3sWbLxyKz_6xu0d_Q8noHgCTT2plx5KAjI4WTxTvGW1nOg/s1600/2013-03-26_09-09-06_955.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvj4Nu3pCO3EYWOAPjAJSSCNyWDO68iFAH6rux_QsAhqqaT-dTN4c2MVHL2j7XRRfs4h-XhnnlIV261NKvz_6WzaeWa659u3sWbLxyKz_6xu0d_Q8noHgCTT2plx5KAjI4WTxTvGW1nOg/s320/2013-03-26_09-09-06_955.jpg" width="240" /></a></span></span></div>
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<span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-family: Verdana, sans-serif;"> Since this was our third Chemo visit, we knew what to expect. We got there on time with all of our supplies for the day. The bag was getting heavier because I had to include his salt and baking soda mouth wash, his "magic" lidocaine mouthwash, his toothbrush tooth paste, his hydrocodaine, aloe vera steroid cream, anti bacterial cream, and don't forget the chapstick. We first visited with the Chemo doctor and he informed Jason that he hadn't lost any more weight, but he needed to weigh himself everyday and try to expand his stomach even if he didn't feel hungry. That we will find out is easier said than done. He also told him that he was going to switch his pain meds and give him Morphine and Oxycodane. Jason didn't like it, but he knew it was the only way to keep the pain at a tolerable level.It turned out to be a good day. I was able to use my time wisely and write some long overdue thank you letters. Jason slept a little and also looked up some muffler shops, after realizing that was the only option. I also knew that Grandma and Grandpa were doing work on our yard with the help of some men in our church. I felt overwhelmed with gratitude. I should have known that things were going to good something had to go wrong!!!!! </span></span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-family: Verdana, sans-serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbwKIMx47xWNCOHA_yr53JrlYQBngnVhRm7cAT90OvgWZz2dKFrZjkdwePZwNYqUtUJitEmek3Ru5L1_auTWTKqvSv-v8ehyphenhyphenQmlf_dkdvowrdliSXsB2EjC96EIaNtYKux1NSv9SOpOqY/s1600/IMG_0624.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbwKIMx47xWNCOHA_yr53JrlYQBngnVhRm7cAT90OvgWZz2dKFrZjkdwePZwNYqUtUJitEmek3Ru5L1_auTWTKqvSv-v8ehyphenhyphenQmlf_dkdvowrdliSXsB2EjC96EIaNtYKux1NSv9SOpOqY/s320/IMG_0624.jpg" width="239" /></a></span></span></div>
<span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-family: Verdana, sans-serif;"> </span></span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-family: Verdana, sans-serif;"> We woke up late this morning, that should have been my first clue! Well actually we didn't wake up late, Jason just took too long to get ready, thus we were a couple minutes late. We got through radiation, behind schedule, but that was their fault. Jason had the address of the best reviewed muffler shop that he had found, so we headed that way. We had a good feeling when we met the guy and trusted what he said. He said that we should call him in an hour to see if we could bring it down. We knew that we couldn't wait there so Jason asked me to call my sister to see if she could let us borrow her car. I was surprised he was so willing to ask for help, but he knew he didn't feel good enough to sit there and wait for the truck to get worked on. She graciously offered her car for as long as we needed it. We figured it would take an hour to get there and back, so it would work out perfectly. We ended up going home to give Jason a protein shake in his feeding tube but headed out from there. We spent some time with my sister but wanted to get ahead of the traffic. Jason said he wouldn't lose me, but luckily gave me the business card that the mechanic had given us. Of course Jason sped off, weaving in and out of traffic. I was keeping up, but between the construction and getting stuck behind a red light. He lost me, oh I mean I should have drove faster....according to him! I started heading which I thought was the right direction when Jason texted me and told me which road I was supposed to be on. I was downtown Grapevine....no where near that road. I got frightened for a sec when I realized.... duh... I have a GPS in my hand. Soon I was on my way and ended up only 15 minutes behind Jason. Just long enough time for him to upgrade his muffler option. by the time we were heading home it was 3:30. So much for Jason being able to go home and rest after his radiation all day. As I was heading to the muffler shop I noticed a greek restaurant I suddenly realized I hadn't eaten all day. When I finally made it to the muffler shop Jason said you want to go back to that greek restaurant don't you. That is what 10 years of marriage does to you. We got my gyro and headed back to the hotel. All of a sudden Jason said I feel like I am going to throw up. Luckily we were able to pull over in time and he threw up the second he stepped out of the card. That was the first time he has thrown up since he has started his chemo. I felt so bad for him and just kept telling him that he can go to the hotel take a shower and get in bed. This is what we walked into when we walked into our room</span></span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-family: Verdana, sans-serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcyeMzVj2yXcMQ6XGG7RWCyrx0W59ITIaz6BZOeJ-iwRkDzolTMMlDwZkfd8-CrLKetT0j7KAEP9L4dwmSDlgcFHwLJwNoph0nPpzuqbeOcdvLX5mgDbgvwQPeNhbrBEp6FvXca7TqbFw/s1600/2013-03-27_16-04-59_653.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="180" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcyeMzVj2yXcMQ6XGG7RWCyrx0W59ITIaz6BZOeJ-iwRkDzolTMMlDwZkfd8-CrLKetT0j7KAEP9L4dwmSDlgcFHwLJwNoph0nPpzuqbeOcdvLX5mgDbgvwQPeNhbrBEp6FvXca7TqbFw/s320/2013-03-27_16-04-59_653.jpg" width="320" /></a></span></span></div>
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<span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-family: Verdana, sans-serif;">I did not know what was going on. I thought well maybe they realized that the sleep number machine wasn't working, yes I am naive. I kept calling the front desk saying my husband is very sick and needs to get in bed. 20 minutes later I called again. Still no one showed up. I took a picture and headed down there pissed off!!!! I should the picture to the front desk attendant and she said we are aware of the situation, we are waiting for the director of operations to talk with you. I thought Uh oh! That doesn't sound good! He came over to me shook my hand and headed me to the other side of the room where no one would hear us. He sat me down and finally got around to saying that they had to check our room for an <b>"INFESTATION"</b>. Is this really happening!!! He said they had the pest control come out and he said they didn't find anything in our room, but there were signs of it. The room next to ours did have it so they wanted to be overly cautious and treat our room too. Of course they moved us to another room, but our stuff had to stay there to be "treated". He didn't know when the pest team was coming back so he wanted us to take out clothes that we would wear for two days and he would send them down to the cleaners and return them to us this night. Jason was able to go over to the room right away and get in bed. Of course I spent the next hour hauling over our toiletries, food, and kitchen supplies. Then Jason decided that he couldn't eat anything that we had so I had to drive to the store and get him CUP OF SOUP!!!! I did it and didn't complain!!! Probably why I have spent the last couple of hours writing this post. I needed to vent. But I have had my new favorite show on in the back ground and heard the Heat lost....finally!!! And no I didn't ask what the infestation was and yes I can't stop itching at.... absolutely nothing!!!! Good night Ya'll!!!</span></span><br />
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<span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-family: Verdana, sans-serif;">Love,</span></span><br />
<span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-family: Verdana, sans-serif;"> Heather </span></span><br />
<br />
<span style="font-family: Georgia, "Times New Roman", serif;"><span style="font-family: Verdana, sans-serif;"> </span></span>Anonymoushttp://www.blogger.com/profile/07949306469189563793noreply@blogger.com1tag:blogger.com,1999:blog-5366391506830241592.post-67581561775867766452013-03-09T21:04:00.003-08:002013-04-03T18:00:02.819-07:00This Is Our Story...<!--[if gte mso 9]><xml>
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<div class="MsoNormal" style="text-align: center;">
January 2010 - February 2012<br />
A good friend of mine told me that when she was waiting for
her mother to have her treatments she would journal on her phone. I appreciated
her advice, but thought that it wouldn’t work for me! When you are sitting in a
dark quiet room and you have read through all your magazines, priorities change
real quickly. </div>
<div class="MsoNormal" style="text-align: center;">
It is hard to know where to begin.</div>
<div class="MsoNormal" style="text-align: center;">
I probably should have been
documenting events since he was first diagnosed, but it didn’t seem that dire
back then. </div>
<div class="MsoNormal" style="text-align: center;">
In another way, I can recall when, where, and what emotions I was
feeling through it all. <o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
I thought Jason was a little crazy, wanting to deploy again
only four months after returning from his first deployment in the C-130. He explained
it to me that if he was able to go on the upcoming deployment, he wouldn’t have
to be gone on the next one, during the Christmas holidays. </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGvJx_fj56vSOY0cHy0sPTtPf3haw6-HS4yOKVpYi_BvwNJfBnhfscMZPuJC1wGq4NxWF-QTHAMRl-MFgNv3YbkbWoUSm_cmpjiV8Eo8ohmfq9_PHBP4HWucOLpNKL4xVed_V8eBhpFdY/s1600/1916_1080811614764_3317_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGvJx_fj56vSOY0cHy0sPTtPf3haw6-HS4yOKVpYi_BvwNJfBnhfscMZPuJC1wGq4NxWF-QTHAMRl-MFgNv3YbkbWoUSm_cmpjiV8Eo8ohmfq9_PHBP4HWucOLpNKL4xVed_V8eBhpFdY/s400/1916_1080811614764_3317_n.jpg" width="400" /></a></div>
<div class="MsoNormal" style="text-align: center;">
He proceeded to do
all the pre-deployment preparation, including a trip to the dentist. While at
the appointment, the dentist noticed a small sore in his mouth and asked him
how long it had been there. Jason explained that he thought it was just a
canker that had been there for a couple of months. Jason had never smoked, chewed tobacco, or drank alcohol in his life so a small sore in his mouth was
nothing he was too concerned about. The dentist insisted on him getting it
biopsied however.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
Jason was first sent to an endodontist to have a small
biopsy. When the results were inconclusive, they then sent him to an oral
surgeon in town to have a larger, quarter size sample taken. At the time, I
wasn’t too worried about it. I was mostly experiencing the typical emotions you
feel before your spouse deploys. <o:p></o:p></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfKbBw5kmPbcITZSxBA2qcESMpv-YeczP3_UgS7-MTC-zBA8O8UAEFsG9l2VEG49j0MCFd12IpKU9PTdZ6DEGeCccCGYvrMvp9vA9EtskDjgWbRGKVc6Tvg7J6BRAO2LI6V6tzqUaXRwQ/s1600/420935_10152150827625297_96140226_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfKbBw5kmPbcITZSxBA2qcESMpv-YeczP3_UgS7-MTC-zBA8O8UAEFsG9l2VEG49j0MCFd12IpKU9PTdZ6DEGeCccCGYvrMvp9vA9EtskDjgWbRGKVc6Tvg7J6BRAO2LI6V6tzqUaXRwQ/s400/420935_10152150827625297_96140226_n.jpg" width="400" /></a></div>
<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="MsoNormal" style="text-align: center;">
Jason’s biopsy came back literally the day before he was set
to deploy. He was actually in the mobility line when he received the call that
his biopsy had come back as carcinoma in-situ. It was explained that this was
something that was on the border between normal and full-fledged cancer. Jason
wasn’t scared, he was just irritated that he couldn’t deploy with the rest of
his squadron, and that someone else would now have to go in his place. I was
torn between being glad that he didn’t have to go, but scared of what was going
to happen to him. He met with doctors and an ENT surgeon who assured him that
they could easily remove it surgically and he would have no further problems. I
was reassured by their optimism.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
Around this time I found out that I was pregnant. This was
obviously a big surprise. We had been trying for the past two years and had
given up hope. We already had two beautiful little boys and thought that was
all we were supposed to have. I told myself that this was God’s gift to us to
give us hope to go on. With the help of my good friend Catherine White and my
loving sister, I was able to stay with Jason during this time and not have to
worry about my boys. His surgery went well, but he was annoyed they made him
stay in the hospital so long. Jason soon regained his ability to eat anything
and speak just as clearly as before the surgery. We both felt this was the end
of it.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
Every three months, Jason and I would have to go to San
Antonio for check-ups. During these trips, we left the boys in the care of my
friend Mary Peterson so they wouldn’t have to miss school and we looked forward
to these outing as our quarterly get away, to make up for the date nights that
we frequently missed. After six months, Jason was able to return to flying.
That was a big deal for him. He had to wait 18 months before he could deploy though.
Lucky for him, a deployment was going out a hair past his 18 month point. Jason
had just been made an aircraft commander and although he was sad to leave us
again, he was happy that he wouldn’t be around to deal with my raging hormones,
since I was pregnant again. This should have been a clue to me that God had
sent us another gift because something was about to happen.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
After casually bringing up to my fellow air force spouse,
whose husband was also on the deployment with Jason, that I was going to drive
to Utah to spend the summer with my in-laws,<span style="mso-spacerun: yes;">
</span>she said she too was driving that way. To the relief of Jason and my
in-laws, we decided to caravan up there. It was a great trip, considering I was
pregnant and traveling with three kids, it all went very smoothly. Jason was
able to call me on my cell phone from the dessert. It was very convenient, but
towards the end of July, I should have noticed that something was up.</div>
<div class="MsoNormal" style="text-align: center;">
We had just returned from our trip and I was at the pool
with my friend Alyssa and our kids. I was sitting at the edge of the pool and
out of the corner of my eye, I saw a man in a desert flight suit. That was a
little odd. I took another look and saw Jason walking toward me!! He was having
someone film us behind him. I guess he was hoping to catch a wonderful scene of
a beautiful bombshell bathing by the side of the pool jumping into his arms, so
glad that he was home. Instead he found a tired, pregnant mom with greasy hair,
stubbly legs, in total shock, only being able to say, “Why are you here? What’s
wrong? What happened?” That video wasn’t shown much!<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
It didn’t help that he wasn’t talking well because he had a
biopsy that morning. The ENT had come in off <span style="mso-spacerun: yes;"> </span>her leave to meet him at Wilford Hall in San
Antonio, after he was flown there from Germany. He began to tell me what he had
kept a secret from me for the last few weeks. He had noticed another sore on
his tongue and they decided to fly him home instead of doing the biopsy in
Germany, because of his history and the fact that the deployment was halfway
over. At this point, I wasn’t too worried that the cancer at returned, just
annoyed that they were being too cautious.</div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOCCUPaAh3biI-f7IqgF0GjM9Jr-3jaUg-JXnRmYfyhz8oCoCbbIiD7DWAkRIRjglTiVlfCe116I3dQje8aj9EVsBrrlTgo9YnAbyk44tWGxGMXkeIyb3KjFJSkQJMQ2p5P09ZM5BHw-g/s1600/13645_1182007757430_404042_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="265" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOCCUPaAh3biI-f7IqgF0GjM9Jr-3jaUg-JXnRmYfyhz8oCoCbbIiD7DWAkRIRjglTiVlfCe116I3dQje8aj9EVsBrrlTgo9YnAbyk44tWGxGMXkeIyb3KjFJSkQJMQ2p5P09ZM5BHw-g/s400/13645_1182007757430_404042_n.jpg" width="400" /></a></div>
<div class="MsoNormal" style="text-align: center;">
A week later, that was validated when the biopsy came back
negative. He was scheduled for routine check-ups just as a precaution. I was
due with our fourth little boy on December 25th and one of his appointments was
scheduled just two weeks before that. I was scared that if he went to that
appointment I would go into labor while he was gone. I guess my prayers were
answered when Harrison came to us a month early. At a week and a half old,
Harrison took his first trip to San Antonio with us for another biopsy on a
spot Jason had noticed again.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
We were busy getting ready for Christmas and weren’t even
thinking about the results of the latest biopsy. It was December 21st, the
Friday before Christmas when Jason got a call from his ENT. He wrote me a note
while talking to her, that the latest biopsy had come back positive for
squamous cell carcinoma. I crumbled to the ground. Really! She couldn’t have
waited until after Christmas to tell us. Jason was trying to be positive and
tell me that it was a small tumor and that it was very treatable.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
I tried to stay positive, but all I could think about was
that if it had spread to his lymph nodes that he was going to die. I stayed
like that for two weeks until he had the scans that proved it had not spread.
With my faith renewed we then had to decide which of the treatment options to
pursue. We were assured by the ENT and the Radiation Oncologist that both
treatments were equally successful. It was kind of scary, though, that each of
them was recommending the other’s treatment. The ultimate decision came down to
Jason not wanting to take the risk of not being able to speak well enough to
remain a pilot. Of course now, we are wondering if we made the right choice.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
It seemed to take forever to get started. Jason was having
problems with getting lodging down in San Antonio, where he would have to stay
for seven weeks, but he eventually got started on February 5th. It was a tough
time on all of us. Luckily he was able to come home on weekends, but he was
hiding how tired he was and that just compounded the problems. We slowly
adjusted to the change in our lives. We even took advantage of the situation
and were able to move into a TLF at Randolph Air Force Base during spring
break. The boys and I were able to spend a week with Jason and did some fun
things in San Antonio. We couldn’t do too much because it would wear Jason out,
but he was able to take a nap most days and the kids were good not to bother
him. </div>
<div class="MsoNormal" style="text-align: center;">
<o:p></o:p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoZW6yV6adcFWtcSKTS0ZSpijvf87CmW4XggWd7w4axjZTRW0u4IJpZsOMlrf_hSboXQLkF_rZ5EOXwGOjPv2VWq8lH_suo0trleiLyYKUEfFt8cD1nyJBV24EqPbRD0PHDpTFsnK0juY/s1600/547618_10151473677005297_727761030_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoZW6yV6adcFWtcSKTS0ZSpijvf87CmW4XggWd7w4axjZTRW0u4IJpZsOMlrf_hSboXQLkF_rZ5EOXwGOjPv2VWq8lH_suo0trleiLyYKUEfFt8cD1nyJBV24EqPbRD0PHDpTFsnK0juY/s640/547618_10151473677005297_727761030_n.jpg" width="360" /></a></div>
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<br /></div>
<div class="MsoNormal" style="text-align: center;">
During the last two weeks of treatment, Jason did not feel
well enough to make the five hour drive back to Abilene on the weekends, but
luckily that was when we had planned for Grandma to come visit. She and I
worked night and day to get the house ready for Jason to come home. I was so
grateful for the help. On the weekend before Jason was set to come home,
Grandma Deb, the boys and I drove down to San Antonio so I would be able to
drive Jason home. </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhT0HCnq31ORQ2C1liuPvw4kIwY-meVDoi2PF77XU0TqfVr96yA-2CSYEr0G2jui4goKxHDYdnsEMYmZwwLnnnfFlKqVSgcFuifc5Sj0Z5yHS1hcZZ0VunUty0Beu-6L74r5fTnahG0QBI/s1600/4688_221384305296_1986176_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhT0HCnq31ORQ2C1liuPvw4kIwY-meVDoi2PF77XU0TqfVr96yA-2CSYEr0G2jui4goKxHDYdnsEMYmZwwLnnnfFlKqVSgcFuifc5Sj0Z5yHS1hcZZ0VunUty0Beu-6L74r5fTnahG0QBI/s400/4688_221384305296_1986176_n.jpg" width="400" /></a></div>
<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="MsoNormal" style="text-align: center;">
When we got back into an area that had cell phone coverage, I
noticed that I had a message from Jason. He said that he had just got back from
the emergency room because his arm that had the PICC line in had been hurting
throughout the night and he had a fever and chills. They had taken out the PICC
line and given him antibiotics and sent him home. They said they would call
when the labs came back. He had been in the emergency room from five in the
morning until afternoon and he also had two finals for classes he was taking
for his Master’s degree due that day. He eventually got the papers finished and
was glad to have these final two classes over.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
Over the next couple of days I did my best to take care of
him and let him rest. By Wednesday, the final day of his radiation treatment,
he was doing much better. He was in with the nurses receiving the Amifostine
they were giving him to protect his salivary glands when he got a call from the
doctor who had seen him in the ER. He was told that they needed to admit him to
the hospital because he had an infection in his blood. After the radiation
treatment we headed back to the emergency room. <o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
When he got there, they put him in a room where Harrison and
I were with him, but soon they came and told him he needed to go into an
isolation room because he probably had MRSA. The nurses all treated him like he
had the plague. When I tried to walk into the room with Harrison, the nurses
tried to stop me. I told them I had been sleeping in the bed with him for the
last three days and that I would take the chance. Eventually they determined
that he did not of MRSA, but MSSA, which meant the staff infection wasn’t
resistant to antibiotics, but rather sensitive to them. Either way, he was
confined to the hospital once again, even though he felt perfectly fine.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
We kept getting the run around from the various doctors that
came to check on him. It seemed like every time a new doctor came in, they
increased his stay time another day. They wanted to do a trans-esophageal echo
cardio gram to check if the staff infection had settled in his heart, but since
he had just had so much radiation to the area, they decided against it. Instead
they decided to treat him as if it had infected the heart valve and put him on
I.V. antibiotics for a month. This would involve him getting another PICC line
and having to carry a pump around with him the entire time. <o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
Over the next month, the home health nurse struggled to keep
the site of the new PICC line from blistering and getting infected again. Jason
was having some sort of allergic reaction and we thought it was to the dressing
they were using to cover the site. We now know it wasn’t the adhesive, but the
Chloroprep they were using to clean the site that he is allergic to. </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOtDuFwcpdtdD4Ehz6dVQx3ClsL5uzlN3obI06LfqduRlEKY1EJQrEBPJyeTbL484B6NoyURZNCLOijJLaI7dATL1x0Ch9NL6A8sgF7TQzPbZv6s2LUzm2_W21DJeWs9MHAQVKpEM5_WM/s1600/559836_10151462450380297_757473267_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOtDuFwcpdtdD4Ehz6dVQx3ClsL5uzlN3obI06LfqduRlEKY1EJQrEBPJyeTbL484B6NoyURZNCLOijJLaI7dATL1x0Ch9NL6A8sgF7TQzPbZv6s2LUzm2_W21DJeWs9MHAQVKpEM5_WM/s400/559836_10151462450380297_757473267_n.jpg" width="400" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqqRONgqvKgcRdAhj_lEn0ZEBgUjHDlQm_w6_BKF0Rf_tWjdFLFXC9IKXky3R-3jmnI8Rt1cbB_I7y9f0WwIhtPfeztMf49QLptT-bixwpMriTHsWXBkw3Unqykhgtg4nLwzmgGjoxrmU/s1600/581193_10151501491400297_804721188_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqqRONgqvKgcRdAhj_lEn0ZEBgUjHDlQm_w6_BKF0Rf_tWjdFLFXC9IKXky3R-3jmnI8Rt1cbB_I7y9f0WwIhtPfeztMf49QLptT-bixwpMriTHsWXBkw3Unqykhgtg4nLwzmgGjoxrmU/s400/581193_10151501491400297_804721188_n.jpg" width="400" /></a></div>
<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="MsoNormal" style="text-align: center;">
The next
month was pretty miserable. In addition to not being able to taste anything,
the constant smell of antibiotics made Jason pretty miserable. Everything he
would eat tasted like those antibiotics smelled. He eventually got off the
antibiotics and his sense of taste gradually returned. He remembers distinctly
that the last thing he was unable to taste was maple syrup, but that too came
back. At this point, we thought this battle was over once and for all and were
ready to get on with our lives.<o:p></o:p></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjszU3praP0_YeiV6mfdkmWUA1p7fGwk7twiedd8XaDTQmW0MBsf-0Joi5pQVD3PrkjGltI0F7yco0GpsvPnrohlOkyNQy4uB7vWAn2t8G4bpKs6fkcacUkL4LNcYh8Wofwv_OYBVyY_UU/s1600/522261_10151491327775297_21028216_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="180" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjszU3praP0_YeiV6mfdkmWUA1p7fGwk7twiedd8XaDTQmW0MBsf-0Joi5pQVD3PrkjGltI0F7yco0GpsvPnrohlOkyNQy4uB7vWAn2t8G4bpKs6fkcacUkL4LNcYh8Wofwv_OYBVyY_UU/s320/522261_10151491327775297_21028216_n.jpg" width="320" /></a></div>
<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="MsoNormal" style="text-align: center;">
In June, Grandma Deb treated us all to a fun trip to
Disneyland and a relaxing stay at a beautiful resort in San Diego. It was so
much fun to be together with all of Jason’s brothers and their families. Jason
and I were also coming up on our tenth anniversary and we had always talked
about taking a special trip to celebrate. Jason asked me where I wanted to go
and I told him to just surprise me. He did a good job. We left the kids with
Grandma and headed to the airport in Salt Lake City. He wouldn’t let me listen
to the ticket agents and made me wear headphones at the gates and not look to
see where we were going. When we got on the plane I received my first of many
surprises. Jason had sprung for first class seats! I really didn’t know life
could be so good.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
The first leg of the trip took us back to Dallas and I
wondered why we were back there. We soon got on another plane however and
headed off to our final destination. Jason spoke with the flight attendants and
let them know that our final destination was a surprise so every time they
would make an announcement, they would give me a warning so I could cover my
ears. They even went so far as to say “Welcome to Costa Rica,” as we were
getting off the plane. I said “See, I knew we were going to Costa Rica!” That
is why I was initially confused when I heard the Jamaican accents from the
security guards in the terminal. We spent the next week at the beautiful
Couples Swept Away Resort in Jamaica. We had the time of our lives. I was able
to relax and do things I never thought I would do, like snorkeling and sailing.<o:p></o:p></div>
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<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="MsoNormal" style="text-align: center;">
A couple of weeks after we got back from the trip, Dylan got
baptized in the same place he had been blessed eight years earlier. At this
time I was having some medical issues that were bothering me and we were also a
little stressed from the drive back from Utah, but we felt like the worst was
behind us, but that all came to a crashing halt one day after we returned home.<o:p></o:p></div>
<div class="separator" style="clear: both; text-align: center;">
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<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="MsoNormal" style="text-align: center;">
A series of bad circumstances and events led to a tragic accident
in which Harrison drowned in our bathtub. I will never forget the feel of
Harrison’s limp lifeless body flopping in my arms as I ran outside and screamed
for help. I started doing CPR and my neighbor came over with her phone and
called 911. My screams had also caught the attention of two Vivident salesmen who
were down the street. Luckily one of them had training as an EMT and was able
to help continue the CPR. The paramedics from the fire department arrived only
a few minutes later, but to me it seemed like an eternity. Jason got back from
the store just as they drilled a hole in Harrison’s shin to put in an IV. At
that point I heard the most wonderful cry I have ever heard in my life. I was
so relieved, but when we got to the emergency room and I was unable to go in
with him, I started to panic again.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
They came out and told us he was still breathing, but they
wanted to life flight him to Cooks Children’s Hospital in Ft. Worth, I came
unglued. I felt like it must be a bad dream and that I was going to wake up at
any moment. The room was filled with doctors, nurses, paramedics and flight
crew and all of them looked as scared and uncertain as I felt. We had called
our bishop and before they loaded Harrison into the helicopter, he and Jason
were able to give our baby a blessing. Jason blessed him that he would make a
full recovery and that the doctors would be guided in their course of
treatment. Despite the comfort that came from the blessing, I still had a bad
feeling about Harrison going with this crew, but I didn’t have a choice.</div>
<div class="MsoNormal" style="text-align: center;">
I was so blessed to have neighbors and friends that
immediately took my other boys into their loving homes. For Jason and me, the
two and a half hour drive to Ft. Worth was the longest of our lives. We had
been waiting for a text from one of the flight nurses who said he would text us
as soon as they landed and we wondered why it was taking so long for them to
get a hold of us. We got the text just shortly before we got to the hospital
saying they had made it. Jason dropped me off at the front and went to park the
car. I’m glad that I waited for him before I went in.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
When we got to the room, we couldn’t believe our eyes. Our
sweet little boy was hooked to all kinds of tubes and wires. It was horrifying,
but it was even worse when the Dr. made sure to sit us down before he told us
we had a very sick little boy. He seemed to read my mind because just at that
moment I thought how Harrison had been breathing on his own earlier and
wondered what happened. He said that as the helicopter was landing and they
were getting him ready to move him,<span style="mso-spacerun: yes;"> </span>the
intubation tube had come out of his mouth and he had went into cardiac arrest.
He said Harrison’s heart had stopped for ten minutes and they had done CPR and
shocked him to get it started again.<o:p></o:p></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5a_yxxGIosv7WC6Wa1Gqlf_duDlymoeOwNZptdsDun82RimhlKGY5f7owifvSvwiLNlcNqBih46Lxw9afLvzKKIXtJSDPQtMnBgWsThL2qAvEfz5Oxd0wwrSHycxJmOvXUHFzJ-7xBTA/s1600/283457_10152150821640297_406461698_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5a_yxxGIosv7WC6Wa1Gqlf_duDlymoeOwNZptdsDun82RimhlKGY5f7owifvSvwiLNlcNqBih46Lxw9afLvzKKIXtJSDPQtMnBgWsThL2qAvEfz5Oxd0wwrSHycxJmOvXUHFzJ-7xBTA/s640/283457_10152150821640297_406461698_n.jpg" width="640" /></a></div>
<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="MsoNormal" style="text-align: center;">
He explained that they had put a hypothermic vest on Harrison
and were keeping the room cool so they could lower his core temperature and
hopefully keep his brain from swelling. We were scared, but had faith that this
procedure would do what it was supposed to do and that our baby would be good
as new again. After four days in the intensive care unit and two more at the
hospital just to make sure, Harrison was home again, crawling around and
laughing with his brothers. We felt so incredibly blessed. I actually remember
saying we have had our share of trials for the year and nothing else could
happen. I should have knocked on wood.<o:p></o:p></div>
<div class="separator" style="clear: both; text-align: center;">
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<br /></div>
<div class="MsoNormal" style="text-align: center;">
Maybe that’s why when Jason noticed another bump under his
tongue we thought it was everything other than cancer. This was September and
Jason was scheduled to go to Squadron Officer School for two months beginning
on the 14th of October. He had to reschedule a follow up appointment for
earlier in October so he could make the class. He met with his radiation
oncologist who wanted a second opinion about the lump. He got Jason in to see
an ENT, but not the one he had seen for the past three years. They also did an
MRI. After all these appointments, the Doctors decided that the bump was only
scar tissue and late radiation changes and nothing to be too concerned about.
With a clean bill of health Jason left for Maxell Air Force Base for two
months. We wonder now if he had seen his regular ENT if she would have insisted
on a biopsy and we would now be in a different position, but we can’t go back
and change the past.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
<br /></div>
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<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="MsoNormal" style="text-align: center;">
Around Thanksgiving, Jason started complaining that his
tongue was starting to hurt more and that it was getting harder to eat certain
things. He was almost done with SOS and already had an appointment scheduled
for after Christmas for a follow up visit, so he stayed and finished his
training. On January fourth Jason had his follow up appointment with his
regular ENT. Since the kids were out of school for Christmas break we had them
with us in San Antonio. Jason went to the appointment by himself so I could
keep all four boys from running wild. After the appointment, Jason said that
the ENT wanted to do a biopsy the next day.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
We had no idea how long the appointment would be, but didn’t
think it would be that long, so Jason left me and the kids at the hotel. He had
the tongue biopsy and then immediately got sent to get a fine needle aspiration
(FNA) on a lymph node in his neck. Had he not come back seven hours later than
I thought with a look of deep sadness and pain on his face, I might have
complained. He told me that the Interventional Radiologist doing the FNA had
said that it didn’t look good to him. I remember feeling like my heart stopped
beating, but I immediately said “Well, he didn’t say that it was cancer.”<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
I held it together for the kids, but woke up in the middle
of the night sobbing. Jason held me in his arms and tried to reassure me that
it would all be ok, but he didn’t sound as certain as I would have liked. We
tried not to think about it, but it was almost impossible. It was the first
time there was a biopsy that I was scared to have final results from. I should
have know when that next<span style="mso-spacerun: yes;"> </span>weekend Jason
was acting very different and talking like he was certain it was cancer.</div>
<div class="MsoNormal" style="text-align: center;">
I went to lunch with my friends the next Monday as happy as
can be, feeling like things were going to be ok. When Jason came home from work
that night, I started asking too many questions. He finally broke down and told
me that the results from the FNA had come back and that there was cancer in his
lymph node. He had heard the results on Friday, but wanted to wait until the
tongue biopsy results were back as well before he told my anything. I kind of
already knew, but was trying to deceive myself and think that if I didn’t know
then it wouldn’t be real. I was devastated, but again tried to hold it together
for the kids. <o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
The next day was Tuesday and I had take Kellen to Mother’s
Day Out. Shortly after I got home, Jason came home from work. It was a little
unusual since it was only about 10:00 in the morning. I asked him what he was
doing home, but the look on his face said it all. He had received the results
of the tongue biopsy and it was also bad news. Jason had prepared himself for
the possibility of a partial glosectomy and a neck dissection, where they would
remove the cancerous part of his tongue and reconstruct it with a flap of skin
from his forearm and also take out all the lymph nodes in the left side of his
neck. He knew it would be a struggle, but was also prepared for that battle. He
was completely unprepared when the surgeon told him the only surgical option
was a complete glosectomy, where they would take out his entire tongue and he
would have a trach and a feeding tube for the rest of his life. The other
option they gave him at the time was palliative chemo therapy. That meant they
couldn’t cure it, but just make him comfortable while he died.<o:p></o:p><br />
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<br /></div>
<div class="MsoNormal" style="text-align: center;">
We spent the rest of the day holding each other and crying
and repeating that he was strong and he would survive, even though both of us
had our doubts. I said things Jason didn’t need to hear like, “I can’t live
without you. My father died when I was Kellen’s age, how can this be
happening?” I was a mess, I couldn’t stop sobbing. When the boys came home, I
hid it as well as I could. Jason stayed home from work for the rest of the
week. We talked a lot about our options and what we would do if he died. We
agreed that I would move back to Utah where the kids would have the support and
care of his family and friends. I knew that if the boys could be raised in the
same community and school that Jason had, that maybe they could turn out as
wonderful as he is.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
They got us in for another appointment down in San Antonio
to discuss our options. What little hope we had was dashed after talking to the
oncologist. He said that if we didn’t do the surgery and radiation was off the
table that the chemo would just delay the inevitable and that Jason would be
dead within a year. We asked him about the chemo therapy trial that our ENT was
trying to get us into at Cancer Therapy Research Center (CTRC), associated with
the University of Texas San Antonio. He told us that it too was not curative. I
asked him if there was a trial that was curative and he said that there was one
at Baylor and left it at that. I keep kicking myself that at the moment I
didn’t say “WELL CAN YOU GET HIM INTO THAT TRIAL?” We left the appointment
hoping we wouldn’t have to return there for strictly palliative care.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
We went to lunch and decided to go shopping afterwards. I
started looking at dresses that I would wear to his funeral. We even saw a sign
in the hall of the mall that said, “This is the end of the line.” Jason had me
take a picture of him next to the sign. This was a strange situation for us to
be in. We were trying to accept this fate and almost laugh at it. We then
headed back to the hospital to meet with the ENT for another appointment. As we
entered San Antonio Military Medical Center (SAMMC), we noticed a large group
of people walking towards us. Jason immediately noticed the two star general,
but I noticed Governor Rick Perry.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
I went up to him and shook his hand, introduced myself and
told him why we were there. I told him that the oncologist had just told us
that Jason was going to die and then immediately began sobbing. He embraced me
and told me that he would help us out and that it wasn’t going to happen. He
told us how he used to live in Abilene and had been a C-130 pilot as well. He
had one of his aides take down or phone numbers and said he would have his
friend who is on the board of regents at MD Anderson, one of the top cancer
hospitals in the country, call us. We then went to the appointment with the
ENT.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
The ENT told us that the oncologist was young and somewhat
inexperienced that she had made the appointment with him as a formality since
he was part of the team at SAMMC, but she really wanted us to talk with the
doctor running the chemo trial at CTRC. We tried to have faith in her words,
but couldn’t get past what we had heard earlier that day. They also scheduled
Jason for a PET scan to make sure it hadn’t spread to his lungs or elsewhere.
We waited two weeks for the results for the scan to come back. During that time
it was a continuous dialogue about how he could be cured or what the family
would do if he died.<o:p></o:p></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAQ0BiMGDx4UO_xs7uiHf0LY1m76H4p0XqJ0A_20XjMJNPIXVQZ_CZXkDpwa68upTWdrFtcZJeZ154NQoDS1U5UCwUuX2iJM5XcIYP4pxX4jZZa93r39YF6xrjYfaLPvoIpZ7y5GCfbuQ/s1600/558074_10151471949685297_30356929_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAQ0BiMGDx4UO_xs7uiHf0LY1m76H4p0XqJ0A_20XjMJNPIXVQZ_CZXkDpwa68upTWdrFtcZJeZ154NQoDS1U5UCwUuX2iJM5XcIYP4pxX4jZZa93r39YF6xrjYfaLPvoIpZ7y5GCfbuQ/s400/558074_10151471949685297_30356929_n.jpg" width="400" /></a></div>
<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="MsoNormal" style="text-align: center;">
Jason was also doing research on the internet, literally
grasping at straws for something that could cure him. He found a trail run by
Baylor University that he thought was the one the oncologist was talking about.
It was run out of Houston and used nano-particles of gold that would be
injected into the body and then stick in the tumor. The doctors would then use
a laser to heat up these particles and kill the tumor, but leave the normal
tissue intact. It seemed like a great option in theory, but there were a lot of
factors that had to be considered. We gave them a call and they wanted to have
copies of all his medical records and the latest PET scan.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
We took another trip to San Antonio to meet with the doctor
at CTRC running the chemo trial. The thing we didn’t like about this option is
that there was only a 50% chance of getting the experimental drug. If Jason
didn’t get the drug it would be just like taking the palliative chemo therapy. Those
were odds we weren’t willing to take. Even though the doctor said he had seen
complete responses on the trial, it still would mean that Jason would have to
be on chemo for the rest of his life. We still couldn’t get over what the other
oncologist had told us and we felt like the other trial would be our best option.
We told this doctor we would think about his trial and then get back to him.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0C7lbcO3vOQrY3sLBYWC8K0jO4mGwOTZ8AnpaBR3VXC6qaTAQNUzNpP6ez31_0IR7DVtGv5oKWgSqa6KGPjhqed2x00cT6I5fIGsMMJdrdvmpvSNnGUgFxKuURibL3k32N1k7_-8uOn8/s1600/555515_10151470661415297_844907227_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0C7lbcO3vOQrY3sLBYWC8K0jO4mGwOTZ8AnpaBR3VXC6qaTAQNUzNpP6ez31_0IR7DVtGv5oKWgSqa6KGPjhqed2x00cT6I5fIGsMMJdrdvmpvSNnGUgFxKuURibL3k32N1k7_-8uOn8/s400/555515_10151470661415297_844907227_n.jpg" width="400" /></a></div>
<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="MsoNormal" style="text-align: center;">
After we got home, Jason’s ENT found out we were thinking
about the nano-particle trial and she wanted us to talk with her boss at UT SA
who had actually enrolled and treated patients with the same trial. This
doctor, who was the head of Otolaryngology at UT SA, called Jason and had a
very honest conversation with him. He said that, in his opinion, the
nano-particle treatment didn’t really do anything and cautioned us against wasting
our time pursing it. He also said that the chemo trial was not curative either
and encouraged us to find a trial that involved radiation, or go with the
surgery. He told Jason to look at it this way; either the cancer would take his
tongue and possibly his life or he could have a surgeon take the tongue and
possibly save his life.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
We were pretty upset since we believed that the
nano-particle trial was the answer we were looking for, but Jason decided to do
what the doctor had advised. He started looking at other clinical trials,
specifically ones that involved radiation. We were under the impression that
radiation was off the table since he had just completed a round less than a
year ago. He found a trial that was being offered by UT Southwestern Medical
Center in Dallas and also by; you guessed it, Baylor out of Dallas. The
difference between the clinical trial and other types of treatments is they are
able to take more risks during the clinical trial.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
Jason read the requirements for the trial and it seemed like
he met all of them. This trial would involve chemo therapy combined with
re-irradiation. Jason had me call the contact listed on the clinical trial
website. After a brief conversation she asked us if we could meet with the
Doctor doing the trial the next day. We were thrilled that we could get an
appointment so quickly. This appointment went like every other appointment,
except they had none of our medical records. The difference is this time I had
a four inch thick ream of paper on my lap that contained all of Jason’s lab
reports, radiology reports and every other medical record he had ever had.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
The doctors left the room to discuss whether or not they
though he would be a good candidate for the trial. When they came back in, I
started shaking. I knew this was our last shot. If Jason could not get into
this trial he would have to do the surgery. When the doctor first started to
talk to us, I thought that was what he was recommending, but that wasn’t it at
all. He just wanted us to know what all of our options were. He said that Jason
would be a good candidate for the trial, but still wanted us to speak with the
ENT at UT Southwestern.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
This appointment didn’t come as quickly, but it actually
worked out better because they had also recommend that Jason get a feeding
tube. We were able to get it placed the next week in Abilene, but it took
longer to heal than Jason had initially thought it should. Jason was having a
lot of pain and was unable to even sit for long periods of time. He spent a few
days in bed, but eventually got up and about. We had the meeting with the ENT
in Dallas and also met with their oncologist. This was about six days after
Jason had the feeding tube put in and when we got home for the appointments,
Jason took a shower. When he got out, the opening around the tube was oozing
puss and blood and was really painful. Jason got dressed and drove himself to
the emergency room.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
I felt bad that I couldn’t go with him, but all the kids
were asleep. I felt some relief when he texted me and said he felt better after
all the puss had drained out. He said they were just going to give him
antibiotics and send him home. The next day he went back to the surgeon who had
put the tube in. The problem was the clamp holding it against his stomach was
too tight. He simply loosened it a bit and told Jason to call if it didn’t get
better in the next couple of days. He also told him to alternate cleaning the
area with hydrogen peroxide and vinegar and to also blow dry the area three
times a day.<o:p></o:p></div>
<div class="MsoNormal" style="text-align: center;">
The next couple of days were spent waiting. We then got a
call from the radiation oncologist at UT Southwestern saying that they wanted
to do another MRI as well as another PET scan at their hospital since the scans
they received from SAMMC were not very clear. Of course we were upset about the
delay and thought this would push back the start date for the trial. We know
that they wanted these scans just to make sure the cancer had not spread
further and cause Jason undo suffering if there was nothing they could do. </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAFSq2ayuyaQOn5wy0RknLoxbkBGxMQfgmnPXnyWoXUmKn0y_9Wwj67Mca4Vg7X1vuoDa9Btq_3qV5WFPgfIqDIULheNDjdW6l9t298k6512s0z8HkCm3dtrCOwwORqmqyZHNdtVl2few/s1600/533696_10151462515910297_788679854_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAFSq2ayuyaQOn5wy0RknLoxbkBGxMQfgmnPXnyWoXUmKn0y_9Wwj67Mca4Vg7X1vuoDa9Btq_3qV5WFPgfIqDIULheNDjdW6l9t298k6512s0z8HkCm3dtrCOwwORqmqyZHNdtVl2few/s400/533696_10151462515910297_788679854_n.jpg" width="400" /></a></div>
<div class="MsoNormal" style="text-align: center;">
<br /></div>
<div class="MsoNormal" style="text-align: center;">
Waiting for the results of the scan was agonizing, but two
days later we received a call from the secretary wondering if we could move the
start date for treatment up a week. We were ecstatic. Obviously this meant the
PET had come back good, but I wanted the Dr. to call us anyway. We had a great
three day weekend with the boys and got everything ready to go. The plan was to
do one round of chemo and then a week later start weekly chemo and daily
radiation for the next six weeks. Before the first round of chemo, we met with
the oncologist again and he explained the risks to us one more time. Of course
by now we were intimately familiar with them and just wanted to get started. He
wanted us to also realize that Jason needed to stay out of sunlight at all
costs and that eventually he would need powerful narcotics for the pain. We
accepted these challenges and got ready for the first round of treatment. Jason got hooked up to the IV and let the chemo start to do
its work. </div>
<div class="MsoNormal" style="text-align: center;">
I sat there and started writing this story. </div>
<div class="MsoNormal" style="text-align: center;">
I wish that I had been
able to finish it then, but it became a much bigger project than I had
anticipated. </div>
<div class="MsoNormal" style="text-align: center;">
I appreciate you sticking it out reading through this. </div>
<div class="MsoNormal" style="text-align: center;">
There are
so many people I want to thank and I don’t know where to begin. </div>
<div class="MsoNormal" style="text-align: center;">
I promise on my
next post to list everyone who has helped us and what they have done.</div>
<div class="MsoNormal" style="text-align: center;">
I want
everyone to know that we wouldn’t be where we are without all your support. </div>
<div class="MsoNormal" style="text-align: center;">
Please leave any comments if you have questions. </div>
<div class="MsoNormal" style="text-align: center;">
Thanks for your loving
support.</div>
<div class="MsoNormal" style="text-align: center;">
<span class="Apple-style-span" style="font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif;">Love, Heather</span></div>
<div class="MsoNormal" style="text-align: center;">
<span class="Apple-style-span" style="font-family: 'Helvetica Neue', Arial, Helvetica, sans-serif;"><br /></span></div>
<div class="MsoNormal">
<o:p></o:p></div>
<!--EndFragment-->Luke and Mariahhttp://www.blogger.com/profile/00259883309206980805noreply@blogger.com2tag:blogger.com,1999:blog-5366391506830241592.post-40424776781099000242013-03-08T00:54:00.000-08:002013-04-03T17:59:07.603-07:00This Week.March 11-15<br />
<br />
<div style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px; text-align: center;">
<span style="color: #333333;">It has been awhile since the all six of us have been a trip together, well for us two months is a long time. Things are mostly the same as always- the latest Disney movie playing, Dylan and Jackson eating chips and arguing about their Mario game, Harrison whining for more food, and Kellen sleeping peacefully. Jason is quiet as usual but not because </span><span class="Apple-style-span" style="color: #333333;">he has nothing to say, because it hurts to talk and he moans because he is so uncomfortable. He has now lost 20 pounds. He is still as handsome as ever, but on an already thin guy who is going to lose even more weight from the chemo and radiation, it isn't a good thing. The treatments make his mouth full of sores and there is the constant state of naseau and exhaustion.</span></div>
<div style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px; text-align: center;">
<span style="color: #333333;"><br /></span></div>
<div style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px; text-align: center;">
<span style="color: #333333;">This week has been full of forced fun. There were moments of true enjoyment but all of us, even the kids, were exhausted and didn't feel good. I will first begin with our arrival to Dallas. Luckily, they changed his final appointment to set up the radiation to Monday afternoon. They first wanted us to come up there on Friday the 8th. That didn't seem to bad to us at first, because we thought it would be his only appointment that week. But they called to tell him that they were moving up his treatments and he would start on the 5th. We were dreading having to go up there again- just one day after we got back, but there was nothing we could do. Right after I called telling them we might be a little late because we couldn't leave till we put the boys on the bus at 7. His appointment was a 10 that morning. Jason texted me and told me they changed the appointment to 3:15 that Monday. I thought how nice of them to change it for us, that wasn't the case though- the RD hadn't finalized his treatment until that next Monday.</span></div>
<div style="text-align: center;">
<span style="color: #333333;"><br /></span></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">Jason and I misunderstood what that appointment was going to be about. I thought they were going to explain the treatments more thoroughly and that they were going to explain all the risks again. so I knew that I needed to be at this meeting. Well it is a good thing that they changed it to Monday because we had to be there anyways. Like I said, the appointment wasn't anything like we thought it was going to be. They let me go back with him and then showed me the machine and his mask and said, "okay well we will be out in a minute." I thought umm aren't we supposed to meet with the doctors? She said, "Nope, that's all we were doing today." If I had driven all the way up there with the babies then had to get them a sitter up there while Jason and I had this so called meeting that we are going to have, then come to find out that it wasn't a meeting at all I would have been very peeved. I of course didn't stay mad for too long especially when Jason came back out and said, "well they're going to go ahead and do my first treatment so now we don't have to come back that next Monday." I was overjoyed. That means we would finish on April 19th and wouldn't have to come back for 1 radiation treatment on April 22nd. By the time Jason and I went to Walmart for a few surprises then went out to dinner we got back to the hotel exhausted. Jason had to be to the chemo clinic at 8am the next morning. </span></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: 'Times New Roman'; font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQ0TvCBe-Q7hQ3UwBhDFa0CNXswN942RsjZ3yeCfVvJrjTAqALCWu5CrOaDo8wLWt-IMf7de923egMZV2_IK1081uC9TfW4UPVsRwZvUapAnTD9zsUeTMI1HfuTpO9eCv89M8b1p8nby4/s1600/2013-03-11_19-29-39_793.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQ0TvCBe-Q7hQ3UwBhDFa0CNXswN942RsjZ3yeCfVvJrjTAqALCWu5CrOaDo8wLWt-IMf7de923egMZV2_IK1081uC9TfW4UPVsRwZvUapAnTD9zsUeTMI1HfuTpO9eCv89M8b1p8nby4/s640/2013-03-11_19-29-39_793.jpg" width="360" /></a></span></span></div>
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<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;"><br /></span></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">Sometime that night Jason's phone died. Therefore, the alarm didn't go off, and we didn't wake up till 7:52 a.m. I was pretty impressed when we showed up at the clinic at 815, but even those 15 minutes had set us back quite a bit. Jason has to get his blood drawn so they can check it and that usually takes 30 to 45 minutes. Then it takes them another half hour to be able to clear a room for us to go in. Between the pre-drugs like a Benadryl and steroids, they had 2 hours of 1 chemo drug then 2 hours of another chemo drug then they had 2 hours of fluids. We were there from 8:15 to 3:30, and we weren't over yet. Then it was off to two stores trying to find specific food for Jason to eat, and back for the radiation treatment at 4:30. They were running behind, so we didn't get out of there until 6 o'clock. I thought he would be done for the night because I felt like I was, but he hadn't eaten since breakfast so we went and had Mexican... again. We also knew we had to go to Costco and to a store where he could find a hat that he could wear outside. All in all, we didn't get back to the hotel till 9:30. We were going to drive to Fort Worth to meet Sara to pick up the boys the next morning. </span></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;"><br /></span></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">We still must have been pretty tired from the day before, because we were running late and I was worried that they were going to have to wait for a while for us. We were so excited to see the boys; they gave us hugs and wouldn't let go. We were going to try to go to the Ripley's Believe It or Not museum on our way home, but that was not going to happen. We ate at Dylan's favorite restaurant Olive Garden. I guess the lecture Jason had gotten from the nutritionist the day before, and all of my gentle prodding had gotten Jason to cheat a bit on his no sugar no carbs diet and he had seafood alfredo. </span></div>
<div style="text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDKgaWwD6SJJLSja63ZSwRjN8dmAs-oXMT2hEAoRYPNnnOtwKiOs8eJPiIfnDNw0REuYEqQSvQ5VUAE5f4ZenS52AGm47-iscwqOt82N9wi4k0kWou5-jYM_UHi6HOBd6StbxH53eIp3w/s1600/2013-03-13_12-57-05_678.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDKgaWwD6SJJLSja63ZSwRjN8dmAs-oXMT2hEAoRYPNnnOtwKiOs8eJPiIfnDNw0REuYEqQSvQ5VUAE5f4ZenS52AGm47-iscwqOt82N9wi4k0kWou5-jYM_UHi6HOBd6StbxH53eIp3w/s400/2013-03-13_12-57-05_678.jpg" width="225" /></a></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">After Jason went to his radiation treatment at 3:30 that is when the forced fun began. It was <i>impossible</i> to keep the kids in the hotel room without going crazy. Our choices were limited because of spring break, but we knew how much Dylan and Jackson liked to go to Great Wolf Lodge and do the magi quest. For those of you who don't know what this is, it is a wizard game where they have to climb up and down the hotel stairs to be able to play it. I thought that Dylan would be so excited that he would be able to get over how he has been sick for the last 5 days but I was wrong he didn't last too long. Of course I was the one who was running up and down the stairs with them. But Jason having to just take care of the babies was hard on him. We knew that we needed to go get something to eat and that Rainforest Cafe was just down the street. I knew that there would be a wait, but I didn't realize that it would be an hour and a half long. Finally, I went up and ask them how much longer we had. When the host saw me holding both of the </span><span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">crying </span><span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">b</span><span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">abies he said for us to just go ahead. The kids did enjoy themselves but we were all literally exhausted. </span></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;"><span class="Apple-style-span" style="border-collapse: separate; color: black; font-family: 'Times New Roman'; font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6lCXZorcADb8-5yfuvki6o_t6Fij2sIkdgCvI-M3NU4mGmMNBnI1Ocpf8s15UGynM05mKEhoQdGsBdFPPELTdlLyS73fBq7CCNRAGrGcgOu6q42Z9H0-TItw_4wKQo1fQjY4bMWnac6w/s1600/2013-03-13_20-31-14_91.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6lCXZorcADb8-5yfuvki6o_t6Fij2sIkdgCvI-M3NU4mGmMNBnI1Ocpf8s15UGynM05mKEhoQdGsBdFPPELTdlLyS73fBq7CCNRAGrGcgOu6q42Z9H0-TItw_4wKQo1fQjY4bMWnac6w/s400/2013-03-13_20-31-14_91.jpg" width="400" /></a></span></span></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;"><br /></span></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">When we woke up the next morning both Jackson and Jason were sick to their stomachs. I knew why Jason was sick, but I had no idea that Jackson had picked up another stomach bug and had been throwing up all morning. We were planning on getting an early start in the morning to be able to go to the zoo, but Jason couldn't even get out of bed and Jackson was curled up in a ball. I didn't know if we would be doing anything that day. I took Dylan, Harrison, and Kellen to breakfast. When we had returned Jason had gotten up ate breakfast and was getting ready to go to the zoo. I knew we were going to be pushing it with the time Jason had to make his radiation appointment at 3:30 because he was meeting with the radiation oncologist. We didn't leave until 11 and didn't arrive at the zoo until 12. I thought it would be a miracle if we were able to get through the zoo in 2 hours with half of DFE also attending. Jason was being such a trooper; I could tell that he felt so sick, but he knew he wanted to take his boys to the zoo. </span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHDQ_RE3iZIAAh9vGp8mGg5gY55mRUN-lvZnlwwo-PfTyRl1EugDJ3hgIEFLOwyWpBOLT842wTQXBMHA9triXKb_EQrSiavaXSs4jcZGXMTI5f3cnzQaAIGVxjn35pq2TSWZehB3o3Gb4/s1600/2013-03-14_12-43-45_148.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhHDQ_RE3iZIAAh9vGp8mGg5gY55mRUN-lvZnlwwo-PfTyRl1EugDJ3hgIEFLOwyWpBOLT842wTQXBMHA9triXKb_EQrSiavaXSs4jcZGXMTI5f3cnzQaAIGVxjn35pq2TSWZehB3o3Gb4/s640/2013-03-14_12-43-45_148.jpg" width="360" /></a></div>
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<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">We were able to make it to the hotel in time for Jason go to his appointment. When Jason had returned from his appointment he had some good news from the doctor: the tumor felt softer so it was probably responding to chemo. I knew we were going to have a hard time getting the kids to sleep because they were all wiped out by 7 o'clock and wanted to go to bed then. I knew that was too early so I made them all go take a bath that did just the opposite effect and got them all riled up. We eventually got them all to sleep. </span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgSHLVnDOceNPrssTslOGpx9YuDDTfOvFO2LrxNre0fUgU-7-AlDi-W5dqRkN2hgM0mHEcVPREX3opKsYV34Ux9sF4vu-2DJKRIco4C1Lg4pVzal_Px-sIr4MivBWJfxc79gZhCoU5sthA/s1600/2013-03-14_19-03-48_691.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="225" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgSHLVnDOceNPrssTslOGpx9YuDDTfOvFO2LrxNre0fUgU-7-AlDi-W5dqRkN2hgM0mHEcVPREX3opKsYV34Ux9sF4vu-2DJKRIco4C1Lg4pVzal_Px-sIr4MivBWJfxc79gZhCoU5sthA/s400/2013-03-14_19-03-48_691.jpg" width="400" /></a></div>
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<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">I knew Jason wasn't going to sleep well because he must of caught a chest cold from somebody and he was up most of the night coughing.</span></div>
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<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">When we woke up this morning it was weird to pack up the hotel room and only taking a few things because we knew we were coming back again on Monday. Jason has his appointment at 10:15, and we were able to head out by 11 o'clock. There was a big traffic jam on I-30 heading into Fort Worth, and we realized it was people trying to go to the Fort Worth Zoo!!! Unbelievable!!! Jason wanted to drive so I started writing this post. Halfway to Abilene he told me that he was getting too tired so I needed to drive. I have never seen him sleep so hard in a car before. I told the boys that when we got home they needed to let Daddy take a nap. It has been four hours now and he still asleep. I hope he feels better when he wakes up. It is so hard to see him go through so much suffering and pain. </span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0dEN0jmgWUM7roO8zavugL_c54lL4N0KvaezQmeFmGOfJRDEdDsxyx-h6tyDnticBdDUlOwT5bpsPcWz8nkfuATu24RndJ2BDKWwE5pNm9yH1jjoWbh4ehyphenhyphenx030Oo-Wa2h88Q4jAjp5A/s1600/2013-03-15_13-49-35_365.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0dEN0jmgWUM7roO8zavugL_c54lL4N0KvaezQmeFmGOfJRDEdDsxyx-h6tyDnticBdDUlOwT5bpsPcWz8nkfuATu24RndJ2BDKWwE5pNm9yH1jjoWbh4ehyphenhyphenx030Oo-Wa2h88Q4jAjp5A/s640/2013-03-15_13-49-35_365.jpg" width="360" /></a></div>
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<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">We knew that this week was going to be hard, but the kids really did pull through and we all made the best out of what we were given!! It is almost better that he didn't start until when he did because I don't know if we would has been able to do what we did if you was later on in his treatment. </span></div>
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<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">Thank you for everyone who has left us an encouraging supportive comment. I know Jason read them and they really do inspire him!!! </span></div>
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<span class="Apple-style-span" style="border-collapse: collapse; color: #222222; font-family: arial, sans-serif; font-size: 13px;">Love, Heather</span></div>
Luke and Mariahhttp://www.blogger.com/profile/00259883309206980805noreply@blogger.com0tag:blogger.com,1999:blog-5366391506830241592.post-18734151654652994172013-03-06T21:56:00.000-08:002013-03-27T18:07:42.223-07:00Just Another Manic Monday.<span class="Apple-style-span" style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;">Jason is working on the computer, but I have been here before and I am not holding my breath!! Lol!</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVycvVTfG8Bz0VtJ3hw_LIUss3srz3FotiXdZxoe9ahrsCJYDmYXsFLOQbCx9piW5u60tQJaWpTPGnYSnrnN926jSmKgG1Htyt0d9t3nkZfbVW5RPvL7AmOkNKq83dlLiOC0s5x7LweP4/s1600/ResizedImage951364302288448.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVycvVTfG8Bz0VtJ3hw_LIUss3srz3FotiXdZxoe9ahrsCJYDmYXsFLOQbCx9piW5u60tQJaWpTPGnYSnrnN926jSmKgG1Htyt0d9t3nkZfbVW5RPvL7AmOkNKq83dlLiOC0s5x7LweP4/s400/ResizedImage951364302288448.jpg" width="225" /></a></div>
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<span class="Apple-style-span" style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;">It was a busy weekend with the arrival of Grandpa and Grandma. Unfortunately, Jason wasn't able to do anything but lay in bed. He was in SO MUCH PAIN...</span><br />
<span class="Apple-style-span" style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;">Luckily he has been able to get a few things done today, but he has had trouble finding a muffler to replace one of his that has cracked. Reminds me of</span><span class="Apple-style-span" style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;"><span class="text_exposed_show" style="display: inline;"> how our toilet tank cracked the night we found out about Jason's diagnosis. Our bathroom, the closet, and halfway into Dylan and Jackson's bedroom was soaked. Luckily i have friends who are well connected. David robles from Heaven's Best carpet cleaning came out right away and took care of it for us. </span></span><br />
<span class="Apple-style-span" style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;"><span class="text_exposed_show" style="display: inline;">That reminds me, another name to add to my list. I was going to write a post of thanks to all of those who have helped us. I have changed my mind and I am going to personally write a letter to everyone who has gone out of their way to ease the burdens that this has caused and continue to help us daily. </span></span><br />
<span class="Apple-style-span" style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;"><span class="text_exposed_show" style="display: inline;">Jason has chemo tomorrow and we will begin the cycle again. I am not looking forward to how much worse it will be for him this time around. </span></span><br />
<span class="Apple-style-span" style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;"><span class="text_exposed_show" style="display: inline;">Please continue to keep him in your prayers. </span></span><br />
<span class="Apple-style-span" style="color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;"><span class="text_exposed_show" style="display: inline;">Love, heather</span></span>Luke and Mariahhttp://www.blogger.com/profile/00259883309206980805noreply@blogger.com0